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Last weekend I sent a letter to this esteemd group with a request for
feedback. I got one reply for which I am very thankful.
In the meantime I updated her list of symptoms. Please, you regular
contributors and others, tell me if you heard or experienced similar.
We are in Puerto Vallarta for the winter and will not meet Veronika's
neurologist until April and this uncertainty about her progress is 'killing'
me. Thank you. Dirk

Here is my updated letter again:




After my wife's (69) diagnosis with PD 2 1/2 years ago I noticed  over time
dramatic changes in her symptoms and would like to know if this is
considered normal.

2 years ago she:

1. had a very hard time climbing in and out of bed
2. her arms were stiff when walking
3. her handwriting became smaller and smaller
4. her upper lip would curl up
5. getting up from a chair or sofa took up to five tries
6. her right foot lower leg would shake a lot
7.complained about brain fog
8. ringing in the ear stopped (99% of the time, don't know if it has
anything to do with Parkinson's)
9.couldn't do phone conversations w. her kids or friends for more than
3-5min
10. abt. 8 months ago, when walking, her upper body would tilt slightly to
the left
11. if she got (negatively!) exited about something, her left hand would
shake very fast  abt. 10" and she would stop it with her other hand

All these symptoms have more or less reversed back to normal. However now
she suffers:

1. weightloss, down from 108lbs to 82lbs
2. moving toes, particularly at night before going to bed , moving up and
down, while her feet try to roll left to right
3.breathing troubles, similar to Asthma, mostly at night
4. early mornings we take a walk, up to an hour and she walks fairly fast
without any help. Then - like a deflated  balloon - she looses power and she
can't walk
  straight any more. But if I ask her to jog, while I walk beside her, she
can do so for abt. 100m or so slow but very straight without loosing any
balance.....???
 She stays more or less  like that for the rest of the day. Her brain
capacity is diminished somewhat and she can't multitask.

She takes 1 1/2  Sinemet 3x a day and a host of other remedies outside trad.
western medicine. I was always under the impression that PD symptoms get,
 over time,  gradually worse and don't disappear. Anyone with similar
experiences? Thank you.

Happy New Year and hoping, that a remedy for PD is just around the corner.

Dirk

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