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Dirk could you expand on "a host of other remedies?" I am a big fan of non traditional ways of healing, but quite many ingestibles can be contraindicated with sinemet. I'd be happy to do some research, I'm also friendly with a young movement disorder specialist who is willing to think outside the western medical parameters. Meg Sent from my iPhone On Jan 3, 2011, at 3:33 PM, Dirk Kukler <[log in to unmask]> wrote: > Last weekend I sent a letter to this esteemd group with a request for > feedback. I got one reply for which I am very thankful. > In the meantime I updated her list of symptoms. Please, you regular > contributors and others, tell me if you heard or experienced similar. > We are in Puerto Vallarta for the winter and will not meet Veronika's > neurologist until April and this uncertainty about her progress is 'killing' > me. Thank you. Dirk > > Here is my updated letter again: > > > > > After my wife's (69) diagnosis with PD 2 1/2 years ago I noticed over time > dramatic changes in her symptoms and would like to know if this is > considered normal. > > 2 years ago she: > > 1. had a very hard time climbing in and out of bed > 2. her arms were stiff when walking > 3. her handwriting became smaller and smaller > 4. her upper lip would curl up > 5. getting up from a chair or sofa took up to five tries > 6. her right foot lower leg would shake a lot > 7.complained about brain fog > 8. ringing in the ear stopped (99% of the time, don't know if it has > anything to do with Parkinson's) > 9.couldn't do phone conversations w. her kids or friends for more than > 3-5min > 10. abt. 8 months ago, when walking, her upper body would tilt slightly to > the left > 11. if she got (negatively!) exited about something, her left hand would > shake very fast abt. 10" and she would stop it with her other hand > > All these symptoms have more or less reversed back to normal. However now > she suffers: > > 1. weightloss, down from 108lbs to 82lbs > 2. moving toes, particularly at night before going to bed , moving up and > down, while her feet try to roll left to right > 3.breathing troubles, similar to Asthma, mostly at night > 4. early mornings we take a walk, up to an hour and she walks fairly fast > without any help. Then - like a deflated balloon - she looses power and she > can't walk > straight any more. But if I ask her to jog, while I walk beside her, she > can do so for abt. 100m or so slow but very straight without loosing any > balance.....??? > She stays more or less like that for the rest of the day. Her brain > capacity is diminished somewhat and she can't multitask. > > She takes 1 1/2 Sinemet 3x a day and a host of other remedies outside trad. > western medicine. I was always under the impression that PD symptoms get, > over time, gradually worse and don't disappear. Anyone with similar > experiences? Thank you. > > Happy New Year and hoping, that a remedy for PD is just around the corner. > > Dirk > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn