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Ray there is a really wonderful booklet u can download called last acts. It walks u thru your thoughts, wishes, desires and decisions in case u become incapacitated. My entire family has done it. I recommend it. At least u have a modicum of control. Tough stuff for sure. Sent from my iPhone On Jan 7, 2011, at 2:52 PM, Rayilyn Brown <[log in to unmask]> wrote: > I got reprogrammed Monday and started Amantadine which has helped a little. I've learned to evaluate my situation by what I can do rather than how I feel. > > This last experience involved an inability to use the computer. Tremor and pain made it almost impossible to move the mouse let alone type. It was also almost impossible to fix a meal and eat it, all actions that enable me to live alone. Now even though I have pain I'm just glad I can do some of these basic things again. Last night I got my income tax for 2010 together, a daunting task if you are well. > > We Parkies never feel "normal"; whether something helps is a matter of degree. > > What do we do when we max out our stimulators and drugs don't help anymore? I know we don't discuss these things on this List, but what do you do when you can't talk, walk, or move? What kind of end of life plans can we make now, especially if we are alone? > > I sometimes feel the knight in the old Monty Python movie who keeps on keeping on as he gradually loses his arms, legs and head in the sword battle. Well, I can lose my voice, but my hands? > > Ray > > Rayilyn Brown > Past Director AZNPF > Arizona Chapter National Parkinson Foundation > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn