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Janet, there are good online DBS groups that you can also consider joining to get information about the surgery. You would need an evaluation as to whether you are suitable for it. PD being the complex illness it is, DBS does not improve many aspects of the illness. There are people who say it has made a difference to their quality of life but others have probably not been as fortunate. I should imagine that there is a caveat - if the surgery has not gone well, you would probably be too unwell to post about it on any online site. Good luck! Moneesha Wife and CG to a PWP On 22 March 2011 23:10, <[log in to unmask]> wrote: > I am writing for some advise and support. I am 58 and have been diagnosed > for 10 years. I was taking sinemet 4x day 25/250 and comtan 200 mg 4x. My > doctor recently changed me to stalevo 200mg. 5x per day. My dyskiniseas on > all the medications are getting bad and my on time is getting less and less. > If lucky I might get 2 hours of on time between each dose. When tired or > under stress sometimes the medicine doesn't even work. My doctor is > recommending DBS but I don't know what to do. I live on Long island outside > of Manhattan. My question is, has anyone had the surgery and did it help? > What is everyone's experience with the surgery? I plan on getting a > second opinion can anyone recommend someone in this area? My movement > disorder doctor and the surgeon are associated with North Shore University > Hospital. By the way, I am still working as a teacher but think I will have > to give it up shortly. > > Janet > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto: > [log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn