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Hi, I had an experimental bi-lateral DBS targetting the PPN area of the brain in Feb 2009, followed by a standard bi-lateral DBS in Jan 2010. To cut a very long and complicated story short, here I am over 2 years later and I have only just managed to get to a level which I would describe as better than I was pre-ops. On the plus side my tremor has disappeared, so has my dyskenesia, both of which were causing me great discomfort, on the negative side, I have not managed to reduce my Madopar ( sinemet equivalent) dosage, I presently take 250mg 3 times day, which is more than it was pre-op, and this has a very negative effect on my speech. And I still fall over which is something that the experimental ppn dbs was supposed to help. Conclusion: I suppose that I am overall better than I was pre-op, but it has been a long, hard journey. Regards, Nigel Harland ----- Original Message ----- From: "Rose Jardim" <[log in to unmask]> To: <[log in to unmask]> Sent: Wednesday, March 23, 2011 7:35 AM Subject: Re: DBS > Hi Janet, > > My Dad had DBS done at the end of November 2010. You need to have an > assessment done in order to assess whether you qualify as a good candidate > for the surgery. This involves a number of different opinions and tests. > > There is alot of information on the surgery itself on the Internet freely > available and on line support groups. > > My Dad has finally settled down - this is after 3 months of healing. His > reaction to the surgery was very bad. He became very aggressive, very > confused and very ill. The Dr's did tell us to hang in and wait as it > would all settle down. At the time we did not trust this opinion but alas > 3 months later and he is doing very well. > > They are still adjusting the stimulator every week but his Parkinson > symptoms have reduced significantly. He battles to walk still due to > muscle damage but he is working on it. > > I wish you well with your research. > > Kind regards > > > > > Rose Jardim > Jardim Chartered Accountants > (d) 011 894 2093 (m) 082 829 3014 (f) 086 568 3879 > [log in to unmask] > > > > -----Original Message----- > From: gervase81 <[log in to unmask]> > To: PARKINSN <[log in to unmask]> > Sent: Wed, Mar 23, 2011 8:00 am > Subject: DBS > > > I am writing for some advise and support. I am 58 and have been > iagnosed for 10 years. I was taking sinemet 4x day 25/250 and comtan > 00 mg 4x. My doctor recently changed me to stalevo 200mg. 5x per day. > y dyskiniseas on all the medications are getting bad and my on time is > etting less and less. If lucky I might get 2 hours of on time between > ach dose. When tired or under stress sometimes the medicine doesn't > ven work. My doctor is recommending DBS but I don't know what to do. > live on Long island outside of Manhattan. My question is, has anyone > ad the surgery and did it help? What is everyone's experience with > he surgery? I plan on getting a second opinion can anyone > ecommend someone in this area? My movement disorder doctor and the > urgeon are associated with North Shore University Hospital. By the > ay, I am still working as a teacher but think I will have to give it > p shortly. > Janet > ---------------------------------------------------------------------- > o sign-off Parkinsn send a message to: > mailto:[log in to unmask] > n the body of the message put: signoff parkinsn > > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn