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Hi Janet,

My Dad had DBS done at the end of November 2010.  You need to have an assessment done in order to assess whether you qualify as a good candidate for the surgery.  This involves a number of different opinions and tests.

There is alot of information on the surgery itself on the Internet freely available and on line support groups.

My Dad has finally settled down - this is after 3 months of healing.  His reaction to the surgery was very bad.  He became very aggressive, very confused and very ill.  The Dr's did tell us to hang in and wait as it would all settle down.  At the time we did not trust this opinion but alas 3 months later and he is doing very well.

They are still adjusting the stimulator every week but his Parkinson symptoms have reduced significantly.  He battles to walk still due to muscle damage but he is working on it.

I wish you well with your research.

Kind regards




 Rose Jardim
Jardim Chartered Accountants
(d) 011 894 2093 (m) 082 829 3014 (f) 086 568 3879
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-----Original Message-----
From: gervase81 <[log in to unmask]>
To: PARKINSN <[log in to unmask]>
Sent: Wed, Mar 23, 2011 8:00 am
Subject: DBS


I am writing for some advise and support. I am 58 and have been 
iagnosed for 10 years. I was taking sinemet 4x day 25/250 and comtan 
00 mg 4x. My doctor recently changed me to stalevo 200mg. 5x per day.  
y dyskiniseas on all the medications are getting bad and my on time is 
etting less and less.  If lucky I might get 2 hours of on time between 
ach dose.  When tired or under stress sometimes the medicine doesn't 
ven work.  My doctor is recommending DBS but I don't know what to do.  
 live on Long island outside of Manhattan.  My question is, has anyone 
ad the surgery and did it help?  What is everyone's experience with 
he surgery?   I     plan on getting a second opinion can anyone 
ecommend someone in this area?  My movement disorder doctor and the 
urgeon are associated with North Shore University Hospital.  By the 
ay, I am still working as a teacher but think I will have to give it 
p shortly.
Janet
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