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Nigel I was sorry to learn of your problems of DBS. Mine was very successful. I had a total of 3 operations. Two on the brain itself and the third to put the device in my stomach and connect the wires. It took 3 trips to get the programing done and take me off the stalevo (6 times a day) and Requip (3 times a day) I now take only 25/100 of carbidopa/ levodopa 3 times a day. I have moved into my own apartment and am driving again. It was a miracle. Pam On Mar 23, 2011, at 6:13 AM, Nigel Harland wrote: > Hi, > I had an experimental bi-lateral DBS targetting the PPN area of the > brain in Feb 2009, followed by a standard bi-lateral DBS in Jan 2010. > To cut a very long and complicated story short, here I am over 2 > years later and I have only just managed to get to a level which I > would describe as better than I was pre-ops. > On the plus side my tremor has disappeared, so has my dyskenesia, > both of which were causing me great discomfort, > on the negative side, I have not managed to reduce my Madopar > ( sinemet equivalent) dosage, I presently take 250mg 3 times day, > which is more than it was pre-op, and this has a very negative > effect on my speech. > And I still fall over which is something that the experimental ppn > dbs was supposed to help. > Conclusion: I suppose that I am overall better than I was pre-op, > but it has been a long, hard journey. > > Regards, > Nigel Harland > > > ----- Original Message ----- From: "Rose Jardim" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Wednesday, March 23, 2011 7:35 AM > Subject: Re: DBS > > >> Hi Janet, >> >> My Dad had DBS done at the end of November 2010. You need to have >> an assessment done in order to assess whether you qualify as a >> good candidate for the surgery. This involves a number of >> different opinions and tests. >> >> There is alot of information on the surgery itself on the Internet >> freely available and on line support groups. >> >> My Dad has finally settled down - this is after 3 months of >> healing. His reaction to the surgery was very bad. He became >> very aggressive, very confused and very ill. The Dr's did tell us >> to hang in and wait as it would all settle down. At the time we >> did not trust this opinion but alas 3 months later and he is doing >> very well. >> >> They are still adjusting the stimulator every week but his >> Parkinson symptoms have reduced significantly. He battles to walk >> still due to muscle damage but he is working on it. >> >> I wish you well with your research. >> >> Kind regards >> >> >> >> >> Rose Jardim >> Jardim Chartered Accountants >> (d) 011 894 2093 (m) 082 829 3014 (f) 086 568 3879 >> [log in to unmask] >> >> >> >> -----Original Message----- >> From: gervase81 <[log in to unmask]> >> To: PARKINSN <[log in to unmask]> >> Sent: Wed, Mar 23, 2011 8:00 am >> Subject: DBS >> >> >> I am writing for some advise and support. I am 58 and have been >> iagnosed for 10 years. I was taking sinemet 4x day 25/250 and comtan >> 00 mg 4x. My doctor recently changed me to stalevo 200mg. 5x per day. >> y dyskiniseas on all the medications are getting bad and my on >> time is >> etting less and less. If lucky I might get 2 hours of on time >> between >> ach dose. When tired or under stress sometimes the medicine doesn't >> ven work. My doctor is recommending DBS but I don't know what to do. >> live on Long island outside of Manhattan. My question is, has anyone >> ad the surgery and did it help? What is everyone's experience with >> he surgery? I plan on getting a second opinion can anyone >> ecommend someone in this area? My movement disorder doctor and the >> urgeon are associated with North Shore University Hospital. By the >> ay, I am still working as a teacher but think I will have to give it >> p shortly. >> Janet >> --------------------------------------------------------------------- >> - >> o sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> n the body of the message put: signoff parkinsn >> >> >> --------------------------------------------------------------------- >> - >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn