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I read your book a few months ago. I had a successful DBS in February 2009 and am doing great. Pam Robillard On Mar 23, 2011, at 9:08 AM, Jackie Christensen wrote: > At the risk of sounding self-serving, I am going to recommend my > book, "Life > with a Battery-Operated Brain: A Patient's Guide to Deep Brain > Stimulation > for Parkinson's Disease." It follows my journey from evaluation to > living > with the device years after surgery. I surveyed 55 others who'd had > DBS so > it includes info from their experiences too. I wrote it because > there isn't > much written from a patient's perspective FOR patients. Anyway, > I've gotten > a lot of good feedback that it's been helpful. YOu can probably > find it at > your library to see if it would be helpful. If you want to buy it, > you can > get it on Amazon or at www.lifewithbobbook.com. Your situation > sounds very > similar to mine. DBS has been a godsend for me but is definitely > not for > everyone. It also is NOT a cure and doesn't halt progression of the > disease. > Another great resource is www.dbs-stn.org, a website run by The > Parkinson > Alliance. > > call me if you'd like: 612-325-0372. > > Best wishes, > > Jackie Hunt Christensen > > On Tue, Mar 22, 2011 at 12:40 PM, <[log in to unmask]> wrote: > >> I am writing for some advise and support. I am 58 and have been >> diagnosed >> for 10 years. I was taking sinemet 4x day 25/250 and comtan 200 mg >> 4x. My >> doctor recently changed me to stalevo 200mg. 5x per day. My >> dyskiniseas on >> all the medications are getting bad and my on time is getting less >> and less. >> If lucky I might get 2 hours of on time between each dose. When >> tired or >> under stress sometimes the medicine doesn't even work. My doctor is >> recommending DBS but I don't know what to do. I live on Long >> island outside >> of Manhattan. My question is, has anyone had the surgery and did >> it help? >> What is everyone's experience with the surgery? I plan on >> getting a >> second opinion can anyone recommend someone in this area? My >> movement >> disorder doctor and the surgeon are associated with North Shore >> University >> Hospital. By the way, I am still working as a teacher but think I >> will have >> to give it up shortly. >> >> Janet >> >> --------------------------------------------------------------------- >> - >> To sign-off Parkinsn send a message to: mailto: >> [log in to unmask] >> In the body of the message put: signoff parkinsn >> > > > > -- > Jackie Hunt Christensen > Parkinson's disease and environmental health activist and author > > cell phone: 612-325-0372 > e-mail: [log in to unmask] > > > > "What shall we choose? Violence or non violence? …We have to choose > knowing > that when we are violent to our enemies, we do violence to > ourselves. When > we brutalize others, we brutalize ourselves. And eventually we run > the risk > of becoming our oppressors. > -- Arundhati Roy > > > > “To answer brutality with brutality is to admit one's moral and > intellectual > bankruptcy.” > > - - Gandhi > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn