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Janet I had DBS in February 2009 and like you was taking Stalevo 5 to 6 times a day and sometimes it didn't work. My biggest problem was freezing but my family said I was constantly moving. To me the DBS surgery was a miracle. However, the DBS isn't a cure and the PD continues to progress. Not everyone is a candidate for DBS, but if your doctor recommends it, go for it. I had mine done at Buffalo General. Pam On Mar 22, 2011, at 1:40 PM, [log in to unmask] wrote: > I am writing for some advise and support. I am 58 and have been > diagnosed for 10 years. I was taking sinemet 4x day 25/250 and > comtan 200 mg 4x. My doctor recently changed me to stalevo 200mg. > 5x per day. My dyskiniseas on all the medications are getting bad > and my on time is getting less and less. If lucky I might get 2 > hours of on time between each dose. When tired or under stress > sometimes the medicine doesn't even work. My doctor is > recommending DBS but I don't know what to do. I live on Long > island outside of Manhattan. My question is, has anyone had the > surgery and did it help? What is everyone's experience with the > surgery? I plan on getting a second opinion can anyone > recommend someone in this area? My movement disorder doctor and > the surgeon are associated with North Shore University Hospital. > By the way, I am still working as a teacher but think I will have > to give it up shortly. > > Janet > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn