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Hi Michele, I am mostly a lurker but this is a great place for help and support. I am 53, have had PD for 14 years. The insurance they may be referring to is long-term care insurance. Impossible to get once PD is your diagnosis! The big things I have learned over these 14 years is to exercise and start low, go slow with new meds. Sorry that you had to join the group but welcome. Ellen -----Original Message----- From: beebabyangels <[log in to unmask]> To: [log in to unmask] Sent: Wed, Jul 13, 2011 11:33 pm Subject: Hello - Intro Hello. I hope I am doing this correctly or I even get responses. :) My name is Michele and I am 35 years-old, mother and wife from Montana. I just got from my trip to University of Utah Hospital to see my new movement disorders specialist. The words from them (after 3 trips to my local neurologist and needed help with a diagnosis of a possible young-onset parkinson's) was this was not the death sentence etc. etc. but won't right down the actual word parkinson's for a year due to getting long term insurance later on. Never heard that before but ok... They are starting me on new medication (I was on Azilect but insurance won't cover it so had to stop) and have a plan for medications if need added, etc. They will be working one-on-one with my local neuro and will see her at least every 3 months and go back to Salt Lake every year - unless needed sooner. I also have direct email contact with them - which I love since I don't have the best luck contacting my local neuro. All this is very scary for me and my family. So, here I am searching out support. Already afraid to be seen in public and trying to be strong!! Michele ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn