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Yes, it was very expensive here but in my previous post I got good news today about it! I get to go on it again. I'm very happy as it did help. Tell me what kind of exercises helped Prem a lot? I was going to the gym a lot until my symptoms got worse and have quit going. :( the fatigue and rigidity has made it hard so now to adjust - just need to find some other things besides just walking I guess. Thanks for the website! I'll check it out! Michele In a message dated 07/14/11 00:54:43 Mountain Daylight Time, [log in to unmask] writes: Michele, Welcome to this forum. I am Moneesha - my husband Prem, now 65, was diagnosed with PD ten years ago but I think began showing the symptoms much earlier. What was your experience with Azilect? He has been on it for almost two years, and it has helped him a lot. Here in India it is an affordable price, but I believe it is quite expensive elsewhere. I am sorry indeed that you have been diagnosed with PD at such a young age. I am glad that you have email contact with the Utah hospital people. It is very reassuring to be able to get in touch with your doctor whenever you need, rather than have to wait to do so. I can well understand that this is scary for you and your family - I think it is for everyone who first hears the diagnosis. However since there is no alternative but to live with it, it really helps to remain as positive as possible. You must also have been told about the benefits of regular exercise - Prem's doctor likened it to the equivalent of at least one dose of medicine a day. I am sure you will get over your fear of being in the public and I am also sure that you will find support among family and friends. Joining a support group makes a huge difference. I am posting a link to a website run by a group of Parkinson's people. You and some others might find it of interest and wish to find out more about them. They contacted me about something, which is how I know about them: http://parkinsonscreativecollective.org/ PD is a very individual kind of illness, but people on this list would have experience of most issues. As Ray said, please don't hesitate to ask for help. Try to be strong, Moneesha Calcutta, India On 14 July 2011 10:03, beebabyangels <[log in to unmask]> wrote: > Hello. I hope I am doing this correctly or I even get responses. :) > > My name is Michele and I am 35 years-old, mother and wife from Montana. I > just got from my trip to University of Utah Hospital to see my new movement > disorders specialist. The words from them (after 3 trips to my local > neurologist and needed help with a diagnosis of a possible young-onset > parkinson's) was this was not the death sentence etc. etc. but won't right > down the actual word parkinson's for a year due to getting long term > insurance later on. Never heard that before but ok... They are starting me > on new medication (I was on Azilect but insurance won't cover it so had to > stop) and have a plan for medications if need added, etc. They will be > working one-on-one with my local neuro and will see her at least every 3 > months and go back to Salt Lake every year - unless needed sooner. I also > have direct email contact with them - which I love since I don't have the > best luck contacting my local neuro. > > All this is very scary for me and my family. So, here I am searching out > support. Already afraid to be seen in public and trying to be strong!! > > Michele > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto: > [log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn