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Sorry that you had to join the group. It is maddening to see another young onset (I am 43, dx at 36 yrs old). There's lots of info out there, just take the time to sieve through it all and be cogzinant/selective of what you need in your ongoing current situation (treatment, when to quit working etc.) One aspect of "treatment" that i find often overlooked and under-studied is the training of your mind and thoughts, the mindfulness of living with PD (or with any chronic condition for that matter). It's been known meditation and mindfulness (for lack of a better word) can structurally change one's brain (no miracle cure here but may facilitate better coping). I can send you some book links if you wish to explore this aspect (there may be 5000+ books on this topic if you do a search but only a handful is practical use). Regards, Ken --------------------- ----- Original Message ----- From: "beebabyangels" <[log in to unmask]> To: <[log in to unmask]> Sent: Thursday, July 14, 2011 12:33 AM Subject: Hello - Intro > Hello. I hope I am doing this correctly or I even get responses. :) > > My name is Michele and I am 35 years-old, mother and wife from Montana. I > just got from my trip to University of Utah Hospital to see my new > movement disorders specialist. The words from them (after 3 trips to my > local neurologist and needed help with a diagnosis of a possible > young-onset parkinson's) was this was not the death sentence etc. etc. but > won't right down the actual word parkinson's for a year due to getting > long term insurance later on. Never heard that before but ok... They are > starting me on new medication (I was on Azilect but insurance won't cover > it so had to stop) and have a plan for medications if need added, etc. > They will be working one-on-one with my local neuro and will see her at > least every 3 months and go back to Salt Lake every year - unless needed > sooner. I also have direct email contact with them - which I love since I > don't have the best luck contacting my local neuro. > > All this is very scary for me and my family. So, here I am searching out > support. Already afraid to be seen in public and trying to be strong!! > > Michele > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn