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Michele I have had Parkinson's for 22 years and I can appreciate what you are going thru. It is not a fun disease. I found out that exercise was the best way to handle it and it was before exercise was promoted for PD patients. My friends used to say I didn't look like I was sick but I used to freeze a lot. I was a real estate broker until I had to stop that position and moved back to New York to be close to family. I suggest that you find a support group to help you through this nightmare. Also check the Internet for the hundreds of sites on PD. I was on Stavelo 6 times a day and then I had DBS surgery and now I take a minimum dosage of Sinemet. The surgery was a miracle for me. Not everyone is a candidate for it and some times it doesn't work, but if your neuro suggests in somewhere down the road, I would go for it. Pam On Jul 14, 2011, at 12:33 AM, beebabyangels wrote: > Hello. I hope I am doing this correctly or I even get responses. :) > > My name is Michele and I am 35 years-old, mother and wife from > Montana. I just got from my trip to University of Utah Hospital to > see my new movement disorders specialist. The words from them > (after 3 trips to my local neurologist and needed help with a > diagnosis of a possible young-onset parkinson's) was this was not > the death sentence etc. etc. but won't right down the actual word > parkinson's for a year due to getting long term insurance later on. > Never heard that before but ok... They are starting me on new > medication (I was on Azilect but insurance won't cover it so had to > stop) and have a plan for medications if need added, etc. They will > be working one-on-one with my local neuro and will see her at least > every 3 months and go back to Salt Lake every year - unless needed > sooner. I also have direct email contact with them - which I love > since I don't have the best luck contacting my local neuro. > > All this is very scary for me and my family. So, here I am > searching out support. Already afraid to be seen in public and > trying to be strong!! > > Michele > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn