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Thanks, Nic! Kathleen On 27 November 2011 04:01, Nic Marais <[log in to unmask]> wrote: > Love your poem Kathleen ;-)) > > Nic 59/17 > > On 26 November 2011 17:03, Kathleen Cochran <[log in to unmask]> wrote: > > Hi Bill and all, > > > > Kathleen Cochran here, dx 1997, listserv participant in varying degrees > of > > activity/inactivity since then. > > > > Hope everyone had a good Thanksgiving Day! > > > > Bill, I share your diminished manual dexterity...TG for voice recognition > > software! I do drive, but I no longer drive at night nor in wretched > > weather, which we here in downstate NY have been experiencing more and > > more. Recently I've been taking greater advantage of the conferencing > > capabilities of Skype and ooVoo, and I'm very interested in your virtual > > support group. > > > > Robert, I'm intrigued by the flowering of your creative capacities in > > tandem with PD. This seems to happen to a lot of PwP. Jolted by the onset > > of PD and the shock of 9/11, I began writing poetry in 2001 and haven't > > stopped. I'm also working on a novel and looking to revive my blog, which > > has been lying dormant for a couple of years. > > > > If anyone would like to read my one and only poem directly about PD, it > is > > in the Yale Journal for Humanities in Medicine, at this address: > > http://yjhm.yale.edu/poetry/kcochran20101030a.htm > > > > I'm in awe of PwP who also contend with cancer and other > life-threatening, > > enormously demanding conditions. I have been fortunate enough thus far to > > have "only" PD and I have to make a conscious effort to reject the > magical, > > "one dread disease per customer" delusion that gets in the way of my > > attending to overall health. > > > > Kathleen > > > > On 23 November 2011 00:39, William Smith <[log in to unmask]> wrote: > > > >> Hello! > >> > >> My name is William Smith. Actually I go by Bill. And yes William Smith > is > >> my real name although sometimes I tell people my alias my real name > being > >> John Doe. > >> > >> I was diagnosed with Parkinson's Disease in 2005 while undergoing > >> chemotherapy for cancer at Memorial Sloan Kettering Cancer Center in New > >> York City. I have been on disability since May 2006. My biggest problem > >> with Parkinson's this finger dexterity, or should I say lack of it. I > also > >> help desk operator/technical support specialist. I was unable to type > and > >> repair equipment as I should. > >> > >> I now use voice recognition software, which is not perfect, but much > >> better than my trying to type I and. I live in rural upstate New York > now. > >> The nearest support group is about 10 miles away. Unfortunately I don't > >> drive, and the meetings are always early afternoon on a weekday. Getting > >> the right is difficult. > >> > >> So I've explored online support groups. There's several other pretty > good. > >> Some of their social. Then there's listserv such as this one. All have > >> their place. For me though it all ends up with the problems typing. I > just > >> can't keep up. So I decided to try something different. I'm sure I'm not > >> unique in this. But I haven't seen this yet. > >> > >> I am starting an online support group that features group video chat Up > to > >> 20 members can see and hear each other on their screenIf more than 20, > the > >> overflow can watch and listen.. There's no software to set up all you > need > >> is a microphone and speakers and a WebCam. As far as the information > >> available it was for group, it's minimal right now. > >> > >> > >> Members will have the opportunity to recommend what they think should be > >> in the library. Meetings can be scheduled whenever is convenient for the > >> members be at once a week once a month daytime and nighttime. > >> > >> I have website It's called Binghamton Past. It's a memory Lane type of > >> site for people from Binghamton New York my hometown. I created a > subgroup > >> within that site's called PDSGBP Parkinson's Disease Support Group at > >> Binghamton Past. There's no cost there's no need to be from Binghamton > is > >> no requirement of any kind. I'd like to invite anybody on this list to > sign > >> on and be a pioneer with me. Should you decide to do so the only > >> information requested is your email, name your gender ,location the > rest of > >> the questions are optiona would like here is the web address: > >> > >> http://binghamtonpast .com > >> > >> Complete the registration process and once you are in, seni me a > message > >> saying you want to join PD SG BP. I will then send you a link to get you > >> started and will take it from there. Again there's no cost and no > >> obligation and again my purpose is trying to have a support group where > I > >> don't have to type. By the way, I read in the charter of this group that > >> being in sight unseen can be a plus and I agree. In this case I have a > need > >> to not havee to type so that I think there's room for both types of > support > >> I hope to hear from you soon. Thank you for your time.== > >> > >> ---------------------------------------------------------------------- > >> To sign-off Parkinsn send a message to: mailto: > >> [log in to unmask] > >> In the body of the message put: signoff parkinsn > >> > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: mailto: > [log in to unmask] > > In the body of the message put: signoff parkinsn > > > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto: > [log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn