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Love your poem Kathleen ;-)) Nic 59/17 On 26 November 2011 17:03, Kathleen Cochran <[log in to unmask]> wrote: > Hi Bill and all, > > Kathleen Cochran here, dx 1997, listserv participant in varying degrees of > activity/inactivity since then. > > Hope everyone had a good Thanksgiving Day! > > Bill, I share your diminished manual dexterity...TG for voice recognition > software! I do drive, but I no longer drive at night nor in wretched > weather, which we here in downstate NY have been experiencing more and > more. Recently I've been taking greater advantage of the conferencing > capabilities of Skype and ooVoo, and I'm very interested in your virtual > support group. > > Robert, I'm intrigued by the flowering of your creative capacities in > tandem with PD. This seems to happen to a lot of PwP. Jolted by the onset > of PD and the shock of 9/11, I began writing poetry in 2001 and haven't > stopped. I'm also working on a novel and looking to revive my blog, which > has been lying dormant for a couple of years. > > If anyone would like to read my one and only poem directly about PD, it is > in the Yale Journal for Humanities in Medicine, at this address: > http://yjhm.yale.edu/poetry/kcochran20101030a.htm > > I'm in awe of PwP who also contend with cancer and other life-threatening, > enormously demanding conditions. I have been fortunate enough thus far to > have "only" PD and I have to make a conscious effort to reject the magical, > "one dread disease per customer" delusion that gets in the way of my > attending to overall health. > > Kathleen > > On 23 November 2011 00:39, William Smith <[log in to unmask]> wrote: > >> Hello! >> >> My name is William Smith. Actually I go by Bill. And yes William Smith is >> my real name although sometimes I tell people my alias my real name being >> John Doe. >> >> I was diagnosed with Parkinson's Disease in 2005 while undergoing >> chemotherapy for cancer at Memorial Sloan Kettering Cancer Center in New >> York City. I have been on disability since May 2006. My biggest problem >> with Parkinson's this finger dexterity, or should I say lack of it. I also >> help desk operator/technical support specialist. I was unable to type and >> repair equipment as I should. >> >> I now use voice recognition software, which is not perfect, but much >> better than my trying to type I and. I live in rural upstate New York now. >> The nearest support group is about 10 miles away. Unfortunately I don't >> drive, and the meetings are always early afternoon on a weekday. Getting >> the right is difficult. >> >> So I've explored online support groups. There's several other pretty good. >> Some of their social. Then there's listserv such as this one. All have >> their place. For me though it all ends up with the problems typing. I just >> can't keep up. So I decided to try something different. I'm sure I'm not >> unique in this. But I haven't seen this yet. >> >> I am starting an online support group that features group video chat Up to >> 20 members can see and hear each other on their screenIf more than 20, the >> overflow can watch and listen.. There's no software to set up all you need >> is a microphone and speakers and a WebCam. As far as the information >> available it was for group, it's minimal right now. >> >> >> Members will have the opportunity to recommend what they think should be >> in the library. Meetings can be scheduled whenever is convenient for the >> members be at once a week once a month daytime and nighttime. >> >> I have website It's called Binghamton Past. It's a memory Lane type of >> site for people from Binghamton New York my hometown. I created a subgroup >> within that site's called PDSGBP Parkinson's Disease Support Group at >> Binghamton Past. There's no cost there's no need to be from Binghamton is >> no requirement of any kind. I'd like to invite anybody on this list to sign >> on and be a pioneer with me. Should you decide to do so the only >> information requested is your email, name your gender ,location the rest of >> the questions are optiona would like here is the web address: >> >> http://binghamtonpast .com >> >> Complete the registration process and once you are in, seni me a message >> saying you want to join PD SG BP. I will then send you a link to get you >> started and will take it from there. Again there's no cost and no >> obligation and again my purpose is trying to have a support group where I >> don't have to type. By the way, I read in the charter of this group that >> being in sight unseen can be a plus and I agree. In this case I have a need >> to not havee to type so that I think there's room for both types of support >> I hope to hear from you soon. Thank you for your time.== >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: mailto: >> [log in to unmask] >> In the body of the message put: signoff parkinsn >> > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn