Print

Print


bill. hi
i tried several times to access your website, but each time get the message "sorry, mozilla firefox unable..etc." i would like to join your group - i have similar problems with typing and unfortunately, thanks mainly to a south african accent compounded by pd and dbs, the dragon has difficulty in understanding me. please write to me off list if there is any other way to join your group
thanks, 

hilary


________________________________
 From: Rayilyn Brown <[log in to unmask]>
To: [log in to unmask] 
Sent: Wednesday, November 23, 2011 10:03 PM
Subject: Re: New member
 
Welcome Bill.  How's the cancer situation?  Nothing like having two serious diseases.  I had cancer too, 30 years ago.
Hoping you find us helpful.
Ray
-----Original Message----- From: William Smith
Sent: Tuesday, November 22, 2011 10:39 PM
To: [log in to unmask]
Subject: New member

Hello!

My name is William Smith. Actually I go by Bill. And yes William Smith is my real name although sometimes I tell people my alias my real name being John Doe.

I was diagnosed with Parkinson's Disease in 2005 while undergoing chemotherapy for cancer at Memorial Sloan Kettering Cancer Center in New York City. I have been on disability since May 2006. My biggest problem with Parkinson's this finger dexterity, or should I say lack of it. I also help desk operator/technical support specialist. I was unable to type and repair equipment as I should.

I now use voice recognition software, which is not perfect, but much better than my trying to type I and. I live in rural upstate New York now. The nearest support group is about 10 miles away. Unfortunately I don't drive, and the meetings are always early afternoon on a weekday. Getting the right is difficult.

So I've explored online support groups. There's several other pretty good. Some of their social. Then there's listserv such as this one. All have their place. For me though it all ends up with the problems typing. I just can't keep up. So I decided to try something different. I'm sure I'm not unique in this. But I haven't  seen this yet.

I am starting an online support group that features group video chat Up to 20 members can see and hear each other on their screenIf more than 20, the overflow can watch and listen.. There's no software to set up all you need is a microphone and speakers and a WebCam. As far as the information available it was for group, it's minimal right now.


Members will have the opportunity to recommend what they think should be in the library. Meetings can be scheduled whenever is convenient for the members be at once a week once a month daytime and nighttime.

I have website It's called Binghamton Past. It's a memory Lane type of site for people from Binghamton New York my hometown. I created a subgroup within that site's called PDSGBP Parkinson's Disease Support Group at Binghamton Past. There's no cost there's no need to be from Binghamton is no requirement of any kind. I'd like to invite anybody on this list to sign on and be a pioneer with me. Should you decide to do so the only information requested is your email, name your gender ,location the rest of the questions are optiona would like here is the web address:

http://binghamtonpast .com

Complete the registration process and once you are  in, seni me  a message saying you want to join PD SG BP. I will then send you a link to get you started and will take it from there. Again there's no cost and no obligation and again my purpose is trying to have a support group where I don't have to type. By the way, I read in the charter of this group that being in sight unseen can be a plus and I agree. In this case I have a need to not havee to type so that I think there's room for both types of support I hope to hear from you soon. Thank you for your time.==

----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn 
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn

----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn