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From Jim        Slattery

On 22/11/2011, at 5:13 PM, Dirk Kukler <[log in to unmask]> wrote:

> Ray,
> she takes  100.25 Sinemet 1 1/2 pills 3x/day. She'll try to reduce it  and
> then we'll see if the hallucination were caused by Sinemet. I talked
> recently to 2 Ex-Parkis who got rid of all symptoms. Here are their websites
> http://www.fightingparkinsonsdrugfree.com/. and
> http://www.biancaschichat.com/2011/08/grand-opening.html
> I met Howard (parkinsondrugfree) a month ago in Florida and was very
> impressed.Both Howard and Bianca maintain that Chi Gong triggered the PD
> symptoms to disappear. My wife started doing chi gong daily.
> It's not very complicated.
> Dirk
> 
> On Mon, Nov 21, 2011 at 12:10 AM, Rayilyn Brown <[log in to unmask]> wrote:
> 
>> Dirk
>> 
>> thanks for the Schuller date.  I did find it after looking for more stuff
>> on this.  I sent the article about the blood vessel abnormality maybe being
>> a factor in PD to my neurologist to see if I could get an MRI even though I
>> don't have trigeminal neuralgia.  This article is recent (9-8-11) and the
>> link is in this post.   So for 3 years this study has been going on.  I
>> still can't remember how Schuller got this mixed  up although I am cited in
>> my first post as demanding an apology from him.   I do remember that.
>> 
>> Interesting you say your wife's symptoms come and go.  I had
>> hallucinations after about a  month of taking Amantadine.  Is she on PD
>> meds?
>> Also, the stem cell treatment results are curious.
>> 
>> What a disease!!!
>> Ray
>> -----Original Message----- From: Dirk Kukler
>> Sent: Sunday, November 20, 2011 11:32 PM
>> To: [log in to unmask]
>> Subject: Re: PD cure like trigeminal neuralgia surgery
>> 
>> Rayilyn,
>> it was in the fall 0f 2008 when Schuller made his PD cure claim. My wife
>> had
>> been diagnosed with PD 5 months earlier and I thought, how lucky we were
>> with this announcement.....
>> 
>> My wife's symptoms come and go. Lately she has daily hallucinations. A year
>> ago she received stem cell treatment in Puerto Vallarta. It brought her
>> weight up from 82 to 94 lbs within 3 weeks and also her asthmalike
>> breathing problems stopped.
>> Dirk
>> On Sat, Nov 19, 2011 at 4:50 PM, Rayilyn Brown <[log in to unmask]> wrote:
>> 
>> Nic
>>> 
>>> DBS is a great help with tremor, but I can barely speak or walk.  Of
>>> course I don't  know what I 'd be like without DBS except for tremor.
>>> 
>>> My mother had trigeminal neuralgia.  She died in 2003.  She declined  the
>>> manipulation of the blood vessel surgery because she had her fill of
>>> surgeries and treatments all her life.  Brain surgery was too much.   She
>>> had stroke from high BP.
>>> 
>>> I am still mystified re Janetta's surgery.   Can't remember how  many
>>> years its been since the Schuller claim. or how Janetta's  TN surgery
>>> differs from his PD surgery.
>>> 
>>> -----Original Message----- From: Nic Marais
>>> Sent: Saturday, November 19, 2011 12:37 AM
>>> To: [log in to unmask]
>>> Subject: Re: PD cure like trigeminal neuralgia surgery
>>> 
>>> 
>>> 
>>> Thanks for this article Ray!!
>>> 
>>> Looks like I'll have to eat my words ;-)
>>> 
>>> Although.... Why does Levodopa work for most of us? And DBS?
>>> 
>>> Ray, you might benefit from this...!
>>> 
>>> Nic 59/17
>>> 
>>> On 18 November 2011 22:35, Rayilyn Brown <[log in to unmask]> wrote:
>>> 
>>> Dr. Janetta is a world renowned authority on the treatment of trigeminal
>>> 
>>>> neuralgia and the surgery he developed accidentally for PD is similar to
>>>> a
>>>> treatment for  TN.  Rev. Schuller talked to him on a plane several years
>>>> ago and jumped the gun on PD cure to give God credit.  Strange.
>>>> Here is a recent article:
>>>> http://www.prweb.com/releases/****2011/9/prweb8773480.htm<http://www.prweb.com/releases/**2011/9/prweb8773480.htm>
>>>> <http**://www.prweb.com/releases/**2011/9/prweb8773480.htm<http://www.prweb.com/releases/2011/9/prweb8773480.htm>>
>>>> 
>>>> 
>>>> 
>>>> Ray
>>>> Rayilyn Brown
>>>> Past Director AZNPF
>>>> Arizona Chapter National Parkinson Foundation
>>>> 
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