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>http://www.kevinmd.com/blog/2011/12/rise-citizen-scientists-patient-initiated-research.html > >Hi everyone! The above is a link to an article about citizen >science. Basically, crowdsourcing ordinary people and patients to >try to uncover new directions for therapies. Over the years, I have >watched this site with interest, people sharing information about >fava beans, curcumin, things like that. I have a friend who is a >statistician, and another who is a systems engineer. Would anyone >be interested in working within (and working on if you have >knowledge) some sort of framework to study something like fava >beans? Or maybe biofeedback? Or Yoga/Exercise? > >I feel like we have this huge group here of computer literate and >engaged patients. Maybe we can help each other and help ourselves - >and make some noise on our own behalf. We would have to come >together to choose what to study, it would have to be something >readily available and without the need for expensive or specialized >equipment. Our results would be anecdotal and probably not close to >scientifically rigourous enough on our own, but maybe we can come up >with enough to get the attention of people who can take it to the >next step? > >I own a website where I could post questionnaires, feedback, >statistics etc...and I can get some professionals to review our work >and help us design a study. I think it could be an exciting project! > >Any interest? > >Meg > >---------------------------------------------------------------------- Go to it Meg. I joined 23 and Me but I'm not sure yet whether what they are doing is what we need. >To sign-off Parkinsn send a message to: mailto:[log in to unmask] >In the body of the message put: signoff parkinsn -- Steve in VT ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn