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Hi Meg, I have had some thoughts along similar lines. Let's talk! Kathleen On 12 December 2011 15:15, Meg Duggan <[log in to unmask]> wrote: > > http://www.kevinmd.com/blog/2011/12/rise-citizen-scientists-patient-initiated-research.html > > Hi everyone! The above is a link to an article about citizen science. > Basically, crowdsourcing ordinary people and patients to try to uncover > new directions for therapies. Over the years, I have watched this site > with interest, people sharing information about fava beans, curcumin, > things like that. I have a friend who is a statistician, and another who > is a systems engineer. Would anyone be interested in working within (and > working on if you have knowledge) some sort of framework to study something > like fava beans? Or maybe biofeedback? Or Yoga/Exercise? > > I feel like we have this huge group here of computer literate and engaged > patients. Maybe we can help each other and help ourselves - and make some > noise on our own behalf. We would have to come together to choose what to > study, it would have to be something readily available and without the need > for expensive or specialized equipment. Our results would be anecdotal and > probably not close to scientifically rigourous enough on our own, but maybe > we can come up with enough to get the attention of people who can take it > to the next step? > > I own a website where I could post questionnaires, feedback, statistics > etc...and I can get some professionals to review our work and help us > design a study. I think it could be an exciting project! > > Any interest? > > Meg > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto: > [log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn