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Hi Ansa! Since I was the patient who participated in the work group which developed the NPF kit, I feel qualified to respond. Many of us who've had PD for awhile have been in the emergency room or hospitalized and encountered that hospital staff have a frightening lack of knowledge of PD! (At least here in the U.S.; I can't speak for other countries.) When I bring it to the hospital or clinic with me, the kit provides - an action plan pamphlet about planning and preparing before my next hospital visit - an ID bracelet that lets medical personnel know that i have PD/ - tools to educate drs. and nurses about drugs that are contraindicated for PD. For example, compazine -- a common anti-nausea medication -- is an anti-dopaminergic drug. There is a list of contraindicated meds on the convenient wallet ID card; a factsheet for hospital staff; and a pad of reminder slips with "Important thingss to remember when caring for people with Parkinson's."The most important thing, of course, is getting my medications on time. - a pad of forms on which to list my medications, neurologist/movement disorder/physician contact info; pharmacy info, etc.. (In my experience, I need a new list for every shift change; - a magnet to display the medication list in my hospital room and at home; and - a 'thank you" card to give to staff that do an especially good job. All of this is packaged in a durable, machine-washable zippered pack. There is also a survey to give feedback about the kit,and a donation envelope. This kit helps me to advocate for myself until knowledge of PD is common enough that I won't need most of it. I can also put extra things in it, such as my pill-timer and some Sinemet (I need the brand name; generic doesnt work for me) in its prescription bottle. Sorry this message is so long. I hope that my explanation helps! Jackie Hunt Christensen On Wed, Apr 11, 2012 at 1:47 AM, Ansa Ojanlatva <[log in to unmask]> wrote: > Would someone kindly explain what hospital care kit is and what the > purpose of it is. Thanks. > Ansa > ________________________________________ > From: Parkinson's Information Exchange Network [ > [log in to unmask]] on behalf of Barbara Ann [[log in to unmask]] > Sent: 10 April 2012 17:41 > To: [log in to unmask] > Subject: Re: Hospital Care Kit > > I ORDERED MY KIT VIA iNTERNET THE END OF FEBRUARY AND DIDN'T RECEIVE IT. > I CALLED THE 800 NUMBER AT NPF A WEEK AGO AND PROMPTLY RECEIVED THE KIT. > BARBARA ANN > > > > -----Original Message----- > From: innarellar <[log in to unmask]> > To: PARKINSN <[log in to unmask]> > Sent: Tue, Apr 10, 2012 2:01 am > Subject: Hospital Care Kit > > > Has anyone received their PD Hospital Care Kit? It seems I ordered mine > ges ago and still nothing. Roberta > ---------------------------------------------------------------------- > o sign-off Parkinsn send a message to: mailto: > [log in to unmask] > n the body of the message put: signoff parkinsn > > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto: > [log in to unmask] > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto: > [log in to unmask] > In the body of the message put: signoff parkinsn > -- Jackie Hunt Christensen Conference chair, "2012 Minnesota Parkinson's Disease Forum: Coming Together for Parkinson's Friendly Communities™" Vice-President, National Parkinson Foundation Minnesota board of directors State Director, Parkinson's Action Network Parkinson's disease and environmental health activist and author * Note all organizational positions are volunteer cell phone: 612-325-0372 e-mail: [log in to unmask] blog: doilooklikeicare2.wordpress.com ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn