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Rick, I think it was Ray who first came out with the term; "Designer Disease"... The few times that I didn't hear my phone alarm, my body also told me it's time for meds. Only problem is that is was then an hour overdue! Nic 60/18 On 9 May 2012 19:18, Rick McGirr <[log in to unmask]> wrote: > Hi, Nic. PD being a "designer disease" (how chic) is basically what I'm > getting at in my point #1. For example, lots of PWP take dopaminergic drugs > like Requip. I can't stand the stuff. I'm also prone to minimize my use of > Sinemet and Stalevo, because I find the tremors more tolerable than > dyskinesia. I assume that your routine and strategies are different from > mine, a designer response for the designer disease, if you will. I was just > struck with the idea that with all the different personal approaches among > us, how would researchers be able to quantify and study one and the next, > and so on. > > For comparison, I rack my pills in a 4x7 plastic holder with removable 4's > around every 9 days, so I just have to grab a 'stick' (one 4-dose pack from > the rack) before I go anywhere. I keep an eye on the time, but my body is > also pretty good at reminding me when it's time. > > Rick > > -----Original Message----- > From: Parkinson's Information Exchange Network > [mailto:[log in to unmask]] On Behalf Of Nic Marais > Sent: Wednesday, May 09, 2012 3:29 AM > To: [log in to unmask] > Subject: Re: CAUSES OF SUDDEN WORSENING IN PARKINSON'S DISEASE > > Rick, > > What I do for the meds is to, first thing in the morning, count out all my > pills etc. for the day and put them in one container which I carry around > with me.To take the right meds at the right times, I set alarms on my smart > phone. I'm not sure how many alarms you can set, 10 was no problem on my > Android phone. With each alarm I write in the message field which meds to > take. > > I read your querry 3. as saying that cases of sudden worsening of PD is > more > prone to occur amongst PD patients who suffer more motor complications than > the average pd patient. Remember, this is a designer disease customized for > each individual. > > Nic 60/18 > > > On 9 May 2012 08:07, Rick McGirr <[log in to unmask]> wrote: > > > A few things come to mind... > > > > 1. How can this be addressed, given the myriad routines and drug > > combos people use to deal with their PD? > > > > 2. Just like tobacco use, the word "preventable" says a lot. It > > behooves us to stay on top of our own conditions. > > > > 3. What is meant by "greater prevalence of motor complications? > > > > Rick Mc > > > > -----Original Message----- > > From: Parkinson's Information Exchange Network > > [mailto:[log in to unmask]] On Behalf Of A Phillips > > Sent: Monday, May 07, 2012 3:14 PM > > To: [log in to unmask] > > Subject: Re: CAUSES OF SUDDEN WORSENING IN PARKINSON'S DISEASE > > > > frustration.... > > > > > > > Date: Fri, 4 May 2012 13:25:40 +0200 > > > From: [log in to unmask] > > > Subject: CAUSES OF SUDDEN WORSENING IN PARKINSON'S DISEASE > > > To: [log in to unmask] > > > > > > CAUSES OF SUDDEN WORSENING IN PARKINSON'S DISEASE > > > > > > Neurologist [2012] 18 (3) : 120-124 (K.S..Zheng, B.J.Dorfman, > > > P.J.Christos, N.R.Khadem, C.Henchcliffe, P. Piboolnurak, > > > M.J.Nirenberg) Complete abstract > > > > > > Episodes of sudden and transient worsening of symptoms commonly > > > occur in Parkinson's Disease, especially when the Parkinson's > > > Disease is more severe. A quarter of people with Parkinson's Disease > > > were found to be affected in this way. Infection was the single most > > > frequent cause, accounting for a quarter of cases. Other common > > > causes were anxiety, medication errors, poor adherence to taking the > > > required drugs, > > medication side effects, and postoperative decline. > > > Overall, over 80% of reasons were attributable to reversible or > > > treatable causes. > > > Most people who experienced a sudden worsening of symptoms recovered > > > fully, but a third of people experienced recurrent episodes. One in > > > six people suffered permanent decline. Those people most prone to > > > sudden or transient worsening were those who had Parkinson's Disease > > > for nearly eight years or more, had more severe symptoms, had > > > greater use of dopaminergic drugs, and had a greater prevalence of > > > motor > > complications. > > > > > > www.viartis.net > > > > > > -------------------------------------------------------------------- > > > -- To sign-off Parkinsn send a message to: > > > mailto:[log in to unmask] > > > In the body of the message put: signoff parkinsn > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: mailto: > > [log in to unmask] > > In the body of the message put: signoff parkinsn > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: mailto: > > [log in to unmask] > > In the body of the message put: signoff parkinsn > > > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto: > [log in to unmask] > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto: > [log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn