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Hi, Nic. PD being a "designer disease" (how chic) is basically what I'm
getting at in my point #1. For example, lots of PWP take dopaminergic drugs
like Requip. I can't stand the stuff. I'm also prone to minimize my use of
Sinemet and Stalevo, because I find the tremors more tolerable than
dyskinesia. I assume that your routine and strategies are different from
mine, a designer response for the designer disease, if you will. I was just
struck with the idea that with all the different personal approaches among
us, how would researchers be able to quantify and study one and the next,
and so on.

For comparison, I rack my pills in a 4x7 plastic holder with removable 4's
around every 9 days, so I just have to grab a 'stick' (one 4-dose pack from
the rack) before I go anywhere. I keep an eye on the time, but my body is
also pretty good at reminding me when it's time.

Rick 

-----Original Message-----
From: Parkinson's Information Exchange Network
[mailto:[log in to unmask]] On Behalf Of Nic Marais
Sent: Wednesday, May 09, 2012 3:29 AM
To: [log in to unmask]
Subject: Re: CAUSES OF SUDDEN WORSENING IN PARKINSON'S DISEASE

Rick,

What I do for the meds is to, first thing in the morning, count out all my
pills etc. for the day and put them in one container which I carry around
with me.To take the right meds at the right times, I set alarms on my smart
phone. I'm not sure how many alarms you can set, 10 was no problem on my
Android phone. With each alarm I write in the message field which meds to
take.

I read your querry 3. as saying that cases of sudden worsening of PD is more
prone to occur amongst PD patients who suffer more motor complications than
the average pd patient. Remember, this is a designer disease customized for
each individual.

Nic 60/18


On 9 May 2012 08:07, Rick McGirr <[log in to unmask]> wrote:

> A few things come to mind...
>
> 1. How can this be addressed, given the myriad routines and drug 
> combos people use to deal with their PD?
>
> 2. Just like tobacco use, the word "preventable" says a lot. It 
> behooves us to stay on top of our own conditions.
>
> 3. What is meant by "greater prevalence of motor complications?
>
> Rick Mc
>
> -----Original Message-----
> From: Parkinson's Information Exchange Network 
> [mailto:[log in to unmask]] On Behalf Of A Phillips
> Sent: Monday, May 07, 2012 3:14 PM
> To: [log in to unmask]
> Subject: Re: CAUSES OF SUDDEN WORSENING IN PARKINSON'S DISEASE
>
> frustration....
>
>
> > Date: Fri, 4 May 2012 13:25:40 +0200
> > From: [log in to unmask]
> > Subject: CAUSES OF SUDDEN WORSENING IN PARKINSON'S DISEASE
> > To: [log in to unmask]
> >
> > CAUSES OF SUDDEN WORSENING IN PARKINSON'S DISEASE
> >
> > Neurologist [2012] 18 (3) : 120-124 (K.S..Zheng, B.J.Dorfman, 
> > P.J.Christos, N.R.Khadem, C.Henchcliffe, P. Piboolnurak,
> > M.J.Nirenberg) Complete abstract
> >
> > Episodes of sudden and transient worsening of symptoms commonly 
> > occur in Parkinson's Disease, especially when the Parkinson's 
> > Disease is more severe. A quarter of people with Parkinson's Disease 
> > were found to be affected in this way. Infection was the single most 
> > frequent cause, accounting for a quarter of cases. Other common 
> > causes were anxiety, medication errors, poor adherence to taking the 
> > required drugs,
> medication side effects, and postoperative decline.
> > Overall, over 80% of reasons were attributable to reversible or 
> > treatable causes.
> > Most people who experienced a sudden worsening of symptoms recovered 
> > fully, but a third of people experienced recurrent episodes. One in 
> > six people suffered permanent decline. Those people most prone to 
> > sudden or transient worsening were those who had Parkinson's Disease 
> > for nearly eight years or more, had more severe symptoms, had 
> > greater use of dopaminergic drugs, and had a greater prevalence of 
> > motor
> complications.
> >
> > www.viartis.net
> >
> > --------------------------------------------------------------------
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