 |
 |
Nope, dentures. I'll keep posted what is happening. Thanks for your message. Patti On Aug 18, 2012, at 1:45 AM, John wrote: > Is this the "new' cure for PD - mouth guard for TMJ? > > We and another PD friend went through a long try at this with little or no gain.But a lot of $$ > > Hope you're talking about something else that really helps! > > Good luck, > > John > > > > ----- Original Message ----- From: "patti zapf" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Friday, August 17, 2012 5:31 AM > Subject: Re: Neupro Patches > > >> I invite all of you to watch for a transformation of Alan, with his new teeth. He starts the process next Tuesday. I believe a miracle is about to take place. >> Stay tuned, patti texas >> >> -----Original Message----- >> From: Parkinson's Information Exchange Network [mailto:[log in to unmask]] On Behalf Of Rayilyn Brown >> Sent: Friday, August 17, 2012 1:38 AM >> To: [log in to unmask] >> Subject: Re: Neupro Patches >> >> John >> >> I've been reading the details on these 'adverse" reactions and it seems >> they are more prevalent among later stage PWPs than early ones. This is >> my 16th year, dxed 1996.... >> >> I'm worried about the building up of the drug as it was a month and a half on Amantadine when I got hallucinations. I have had so many medical >> problems in my life I am tired of experimenting. Was allergic to chemo >> after 8 months. >> >> MJFox's new regime seems to have really helped whatever it is. >> >> Thanks. and good luck >> >> -----Original Message----- >> From: John >> Sent: Thursday, August 16, 2012 11:21 PM >> To: [log in to unmask] >> Subject: Re: Neupro Patches >> >> Interesting. We just got samples from Dr, for 7 days, and a prescription for another 30 days. Weaned off of Requip (ropinerole) over one week and put on the first patch yesterday, second one today. No adverse reactions yet, and not sure about the effectiveness - Sue is also on some new blood pressure meds (to raise BP) and it seems to cause some major problems that act like 'off time' for PD. >> >> We're concerned cause the info with Neupro suggested starting an advanced Parkinson's patient at 4mg per 24 hours, while what we got is 1mg! A call to Dr got usual, "I always start my patients on very low dose to make sure no side effects . . ." . So we're a little worried that the Neupro may not even do whatever the Requip was providing, which wasn't a whole lot. >> >> We'll see. >> >> John, for Sue diagnosed in 2003. >> >> >> ----- Original Message ----- >> From: "Rayilyn Brown" <[log in to unmask]> >> To: <[log in to unmask]> >> Sent: Thursday, August 16, 2012 10:14 PM >> Subject: Neupro Patches >> >> >>> I finally got the Neupro Patch samples but decided not to try them due to >>> too many possible adverse reactions. I know they have to be listed , but >>> I don’t have much luck with meds. Amantadine gave me horrible >>> hallucinations. >>> >>> Hallucinations, bad experience with Amantadine >>> Psychotic behaviors, I value my sanity, about all I have left. >>> Weight gain, have been unable to lose for last 30 years >>> blood pressure elevation, I take BP med >>> daytime sleepiness, I have trouble sleeping at night >>> >>> are a few possible side effects. >>> >>> Does anyone on the List use Neupro patches? I’d be interested in your >>> experiences and if/how it has helped you. >>> Ray >>> Rayilyn Brown >>> Past Director AZNPF >>> Arizona Chapter National Parkinson Foundation >>> >>> ---------------------------------------------------------------------- >>> To sign-off Parkinsn send a message to: >>> mailto:[log in to unmask] >>> In the body of the message put: signoff parkinsn >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn