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Is this the "new' cure for PD - mouth guard for TMJ? We and another PD friend went through a long try at this with little or no gain.But a lot of $$ Hope you're talking about something else that really helps! Good luck, John ----- Original Message ----- From: "patti zapf" <[log in to unmask]> To: <[log in to unmask]> Sent: Friday, August 17, 2012 5:31 AM Subject: Re: Neupro Patches >I invite all of you to watch for a transformation of Alan, with his new >teeth. He starts the process next Tuesday. I believe a miracle is about >to take place. > Stay tuned, patti texas > > -----Original Message----- > From: Parkinson's Information Exchange Network > [mailto:[log in to unmask]] On Behalf Of Rayilyn Brown > Sent: Friday, August 17, 2012 1:38 AM > To: [log in to unmask] > Subject: Re: Neupro Patches > > John > > I've been reading the details on these 'adverse" reactions and it seems > they are more prevalent among later stage PWPs than early ones. This > is > my 16th year, dxed 1996.... > > I'm worried about the building up of the drug as it was a month and a half > on Amantadine when I got hallucinations. I have had so many medical > problems in my life I am tired of experimenting. Was allergic to chemo > after 8 months. > > MJFox's new regime seems to have really helped whatever it is. > > Thanks. and good luck > > -----Original Message----- > From: John > Sent: Thursday, August 16, 2012 11:21 PM > To: [log in to unmask] > Subject: Re: Neupro Patches > > Interesting. We just got samples from Dr, for 7 days, and a prescription > for another 30 days. Weaned off of Requip (ropinerole) over one week and > put on the first patch yesterday, second one today. No adverse reactions > yet, and not sure about the effectiveness - Sue is also on some new blood > pressure meds (to raise BP) and it seems to cause some major problems that > act like 'off time' for PD. > > We're concerned cause the info with Neupro suggested starting an advanced > Parkinson's patient at 4mg per 24 hours, while what we got is 1mg! A call > to Dr got usual, "I always start my patients on very low dose to make sure > no side effects . . ." . So we're a little worried that the Neupro may not > even do whatever the Requip was providing, which wasn't a whole lot. > > We'll see. > > John, for Sue diagnosed in 2003. > > > ----- Original Message ----- > From: "Rayilyn Brown" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Thursday, August 16, 2012 10:14 PM > Subject: Neupro Patches > > >>I finally got the Neupro Patch samples but decided not to try them due to >>too many possible adverse reactions. I know they have to be listed , but >>I don’t have much luck with meds. Amantadine gave me horrible >>hallucinations. >> >> Hallucinations, bad experience with Amantadine >> Psychotic behaviors, I value my sanity, about all I have left. >> Weight gain, have been unable to lose for last 30 years >> blood pressure elevation, I take BP med >> daytime sleepiness, I have trouble sleeping at night >> >> are a few possible side effects. >> >> Does anyone on the List use Neupro patches? I’d be interested in your >> experiences and if/how it has helped you. >> Ray >> Rayilyn Brown >> Past Director AZNPF >> Arizona Chapter National Parkinson Foundation >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn