Hi,
Re balance...I underwent an experimental DBS, specifically targetting
the area of the brain which deals with balance issues(PPN) back in 2009.The
initial results were fantastic, the day after the op' I could walk with no
balance problems, I could talk
and my sense of smell returned, and there were no more tremors or
dyskenesias, It was a shame that all of these good points slowly went away
after one week, never to reappear,despite numerous visits to the hospital to
fine tune the stimulators.
I had a standard DBS (STN)
a year later which has helped but it certainly hasn't been the " Fix All "
that I had been hoping for.
I am still falling over approx' 3 times a day, would be more if I didn't use
my walker.
1/ I think that high dosage of Madopar ( sinemet eqv) contributes towards
falling
2/ I think that Neupro patches contribute to obsessive behaviour problems,
I am now on ropinerole which is not a lot better to be honest
3/ If anyone has any ideas about solving the balance problems please can you
let us know !!
Regards,
Nigel Harland age 57, dx 1989
----- Original Message -----
From: "A Phillips" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Tuesday, August 21, 2012 3:51 PM
Subject: Re: balance/Amanda
> Not really, in fact I think the Sinemet may be making it worse.
> Confidence seems to be a majorfactor. I use a 4-wheel rollator and a
> knee-scooter in the corridor / for short trips outside (my flat is shaped
> like a railway carriage,with a long corridor).Have you had an eye-test in
> the last year ? Being able to see clearly helps. Only pain I get on
> moving is banging into things.In off periods I often crawl as its' easier.
> > Date: Mon, 20 Aug 2012 09:50:10 -0700
>> From: [log in to unmask]
>> Subject: balance/Amanda
>> To: [log in to unmask]
>>
>> Amanda
>>
>> does anything you take help with balance? So far I can stand the pain
>> associated with moving, but really fear falling again. Black eyes and
>> hematomas may not be all I get if I fall again (fell 3 times this
>> winter).
>>
>> -----Original Message-----
>> From: A Phillips
>> Sent: Sunday, August 19, 2012 6:56 PM
>> To: [log in to unmask]
>> Subject: Re: Neupro Patches
>>
>> I use Neupro patches. A few rather feeble hallucinations (come on, is
>> that
>> the best my subconscious can do ?) & insomnia but am also on pramipexole,
>> entacaponeand sinemet.
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