-----Original Message-----
From: Rayilyn Brown
Sent: Saturday, August 25, 2012 9:41 AM
To: hilary blue
Subject: Re: balance/Hilary
I did a search and found an interesting exercise - right heel to left toe,
left heel to right toe, like a tightrope walker. I have to use walker,
but I think it may be helping. Tightwire artists have great balance,
there may be something to it.
40 years with pd and I thought 16 was bad!!
-----Original Message-----
From: hilary blue
Sent: Thursday, August 23, 2012 1:59 PM
To: [log in to unmask]
Subject: Re: balance/Amanda
try exercise that is spe cifically designed to improve balance. ask your
doctor to prescribe a course of physiotherapy. they have exercises for
everything nowadays - including urinary incontinence a d constipation
it cant hurt and any exercise is good so give it a try. it worked for me.i
had the usual dbs that makes balance worse - after a couple of bad falls i
tried pt and it is working!
best wishes and good luck ,
from hilary (40 years with pd and still going strong)
________________________________
From: Nigel Harland <[log in to unmask]>
To: [log in to unmask]
Sent: Wednesday, August 22, 2012 8:20 AM
Subject: Re: balance/Amanda
Hi,
Re balance...I underwent an experimental DBS, specifically targetting
the area of the brain which deals with balance issues(PPN) back in 2009.The
initial results were fantastic, the day after the op' I could walk with no
balance problems, I could talk
and my sense of smell returned, and there were no more tremors or
dyskenesias, It was a shame that all of these good points slowly went away
after one week, never to reappear,despite numerous visits to the hospital to
fine tune the stimulators.
I had a standard DBS (STN)
a year later which has helped but it certainly hasn't been the " Fix All "
that I had been hoping for.
I am still falling over approx' 3 times a day, would be more if I didn't use
my walker.
1/ I think that high dosage of Madopar ( sinemet eqv) contributes towards
falling
2/ I think that Neupro patches contribute to obsessive behaviour problems,
I am now on ropinerole which is not a lot better to be honest
3/ If anyone has any ideas about solving the balance problems please can you
let us know !!
Regards,
Nigel Harland age 57, dx 1989
----- Original Message ----- From: "A Phillips"
<[log in to unmask]>
To: <[log in to unmask]>
Sent: Tuesday, August 21, 2012 3:51 PM
Subject: Re: balance/Amanda
> Not really, in fact I think the Sinemet may be making it worse. Confidence
> seems to be a majorfactor. I use a 4-wheel rollator and a knee-scooter in
> the corridor / for short trips outside (my flat is shaped like a railway
> carriage,with a long corridor).Have you had an eye-test in the last year ?
> Being able to see clearly helps. Only pain I get on moving is banging
> into things.In off periods I often crawl as its' easier.
> > Date: Mon, 20 Aug 2012 09:50:10 -0700
>> From: [log in to unmask]
>> Subject: balance/Amanda
>> To: [log in to unmask]
>>
>> Amanda
>>
>> does anything you take help with balance? So far I can stand the pain
>> associated with moving, but really fear falling again. Black eyes and
>> hematomas may not be all I get if I fall again (fell 3 times this
>> winter).
>>
>> -----Original Message----- From: A Phillips
>> Sent: Sunday, August 19, 2012 6:56 PM
>> To: [log in to unmask]
>> Subject: Re: Neupro Patches
>>
>> I use Neupro patches. A few rather feeble hallucinations (come on, is
>> that
>> the best my subconscious can do ?) & insomnia but am also on pramipexole,
>> entacaponeand sinemet.
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