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Thanks for the answers, Scott. I am so very glad to find a PD site where there is activity. There's no substitute for experience. Somehow I feel so much more thoroughly heard. Thanks to you and to all particpating in this forum. Linda ----- Original Message ----- From: "Scott E Antes" <[log in to unmask]> To: <[log in to unmask]> Sent: Tuesday, August 21, 2012 8:50 AM Subject: Re: decline after fall--Positive Update > Hi Linda. Laureen went the DBS route when Sinemet developed its eventual > and usual side effects (dyskinesia). It was a tossup as to which was > worse--the meds or the disease. The DBS succesfully eliminated tremors > and dyskinesia, and for a short while she needed no meds whatsoever. That > was five years ago. The she went on Neupro, as I discussed previously. > Hope this answers your questions somewhat. Be well. Scott > > Scott E. Antes > Northern Arizona University > Department of Anthropology > PO Box 15200 > Flagstaff, AZ 86011 > ________________________________________ > From: Parkinson's Information Exchange Network > [[log in to unmask]] on behalf of Linda [[log in to unmask]] > Sent: Monday, August 20, 2012 11:50 PM > To: [log in to unmask] > Subject: Re: decline after fall--Positive Update > > Hi Scott, > > I am new to the list but want you to know that Laureen's update is very > encouraging to me as I seem to be in a flare right now with my PD. Does > she > take sinemet and requip? All I've taken so far is sinemet. Until I back > off of it a little, it doesn't seem like it's working much. When I back > off, ohhhh the increase in pain while walking and standing. I've got to > trouble shoot that as within the last couple of weeks I've had lots more > trouble getting around. The only thing I did different was to go back to > swimming and move lots in the pool. Sure hope that's not it as that's the > one place I rarely hurt when I move. > > Thanks again for your positive update. > > ----- Original Message ----- > From: "Scott E Antes" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Monday, August 20, 2012 6:07 AM > Subject: Re: decline after fall--Positive Update > > >> Hi Ray and All! >> >> Thanks and good news! Laureen has turned around! She's improved more in >> the past four days at home than she did in four weeks of skilled nursing >> and rehab. Just as a test, her neurologist (Dr. Samanta) asked her to >> stop the Neupro patch and go back on the Requip. Almost instant >> recovery. >> (Apparently her system became used to the Requip, during the time Neupro >> was off the market. Between the med change and being back at home she is >> doing much, much, better. She's still not quite where she was before her >> fall and hip injury, but she's getting real close. Be well. Scott >> >> Scott E. Antes >> Northern Arizona University >> Department of Anthropology >> PO Box 15200 >> Flagstaff, AZ 86011 >> ________________________________________ >> From: Parkinson's Information Exchange Network >> [[log in to unmask]] on behalf of Rayilyn Brown >> [[log in to unmask]] >> Sent: Saturday, August 18, 2012 9:30 AM >> To: [log in to unmask] >> Subject: decline after fall >> >> Scott and All >> >> In 2008 I fell on my tailbone and it took a year to get better although >> was told nothing was broken. This fall marked the beginning of my 2nd >> PD decline. My first was in 2002-2003 with my Mother’s stroke and death >> between my DBS surgeries in 2003. I am convinced that physical and >> emotional traumas make this disease worse by speeding progression. >> >> I am thinking specifically now of Laureen’s situation of falling while >> on >> the neupro patch. She has been in better shape than me until now. >> Scott, this really upsets me. I feared there might be a problem as she >> has not emailed me. Please tell her I send my love her way. >> >> Ray >> >> Rayilyn Brown >> Past Director AZNPF >> Arizona Chapter National Parkinson Foundation >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn