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thank you, Linda, for making my day with your kind comments. Your support gives me the strength to carry on. Ray -----Original Message----- From: Linda Sent: Friday, October 05, 2012 12:18 AM To: [log in to unmask] Subject: Re: back, neck and leg pain Thanks for your input, Ray. And many, many thanks for the articles you post. You are the best source of information on this disease I have found anywhere. So glad I found you and this list! Linda ----- Original Message ----- From: "Rayilyn Brown" <[log in to unmask]> To: <[log in to unmask]> Sent: Thursday, October 04, 2012 10:22 PM Subject: Re: back, neck and leg pain > Linda > > I have had PD 16 years and can't remember when my pain started, but it has > gotten bad this last year. My right hip area hurts when I walk probably > because my left leg is drawn up and I'm on my left toes. When I sit or > don't move I'm OK, so I'm convinced it is PD; also it varies, I never > know just what it will be like. I get leg pain when I move in bed. > > In my opinion, I think you are wise to be wary of invasive procedures. It > sounds like you have a number of things going on at once. > > I think I'm learning what it is like to turn to stone. > > Ray > > -----Original Message----- > From: Linda > Sent: Thursday, October 04, 2012 3:09 PM > To: [log in to unmask] > Subject: back, neck and leg pain > > I would appreciate some input from other people with Parkinson's in regard > to the issue of pain. I have been told that I have degenerative disk > disease with a narrowing of the spinal column in the lumbar area. I was > also told that my left knee was bone on bone in 2006 and would need a > replacement sometime in the future. I was diagnosed with fibromyalgia in > 1997's and diagnosed with Parkinson's disease in May of 2010. > > It seems like there are so many factors that I am very hesitant to do or > have done any invasive measures such as knee replacement or back surgery > because I feel like it will not resolve enough of the pain issues to be > worth the risk and the attempted rehabilitation. The neurologist I have > just been seeing recently made the statement that the pain would not be > from Parkinson's. I'm not sure if she thinks that pain is not a part of > the disease or that she feels that the pain I described wouldn't be from > the disease. My current back pain appeared to become acute after swimming > a few days in a row. It felt very good in the water to twist and turn my > body but after that, movement became more difficult than my pain level > increased radically. > > It was very helpful to be on this list and receive the information about > briefings through the Parkinson's organization. I was able to get the > briefing on Parkinson's and pain and found that most informative. I plan > to be reviewing many of those articles. The recent stem cell article was > also very interesting. > > I would appreciate any input from others as to their experiences and > thoughts on the little bit of information that I have given here. > > Thanks, Linda > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn