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Thank you again for very pertinent articles. It is so encouraging to gain more understanding. I find I really need to have a strong sense of what is right for me so that I don't get confused by different takes on my issues from the health profession. I live in Alaska about 150 miles from Anchorage so we have far more generalists than specialists. ----- Original Message ----- From: "Rayilyn Brown" <[log in to unmask]> To: <[log in to unmask]> Sent: Friday, October 05, 2012 10:37 AM Subject: Re: back, neck and leg pain > thank you, Linda, for making my day with your kind comments. Your support > gives me the strength to carry on. > > Ray > > -----Original Message----- > From: Linda > Sent: Friday, October 05, 2012 12:18 AM > To: [log in to unmask] > Subject: Re: back, neck and leg pain > > Thanks for your input, Ray. And many, many thanks for the articles you > post. You are the best source of information on this disease I have found > anywhere. So glad I found you and this list! Linda > ----- Original Message ----- > From: "Rayilyn Brown" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Thursday, October 04, 2012 10:22 PM > Subject: Re: back, neck and leg pain > > >> Linda >> >> I have had PD 16 years and can't remember when my pain started, but it >> has >> gotten bad this last year. My right hip area hurts when I walk >> probably >> because my left leg is drawn up and I'm on my left toes. When I sit or >> don't move I'm OK, so I'm convinced it is PD; also it varies, I never >> know just what it will be like. I get leg pain when I move in bed. >> >> In my opinion, I think you are wise to be wary of invasive procedures. >> It >> sounds like you have a number of things going on at once. >> >> I think I'm learning what it is like to turn to stone. >> >> Ray >> >> -----Original Message----- >> From: Linda >> Sent: Thursday, October 04, 2012 3:09 PM >> To: [log in to unmask] >> Subject: back, neck and leg pain >> >> I would appreciate some input from other people with Parkinson's in >> regard >> to the issue of pain. I have been told that I have degenerative disk >> disease with a narrowing of the spinal column in the lumbar area. I was >> also told that my left knee was bone on bone in 2006 and would need a >> replacement sometime in the future. I was diagnosed with fibromyalgia in >> 1997's and diagnosed with Parkinson's disease in May of 2010. >> >> It seems like there are so many factors that I am very hesitant to do or >> have done any invasive measures such as knee replacement or back surgery >> because I feel like it will not resolve enough of the pain issues to be >> worth the risk and the attempted rehabilitation. The neurologist I have >> just been seeing recently made the statement that the pain would not be >> from Parkinson's. I'm not sure if she thinks that pain is not a part of >> the disease or that she feels that the pain I described wouldn't be from >> the disease. My current back pain appeared to become acute after swimming >> a few days in a row. It felt very good in the water to twist and turn my >> body but after that, movement became more difficult than my pain level >> increased radically. >> >> It was very helpful to be on this list and receive the information about >> briefings through the Parkinson's organization. I was able to get the >> briefing on Parkinson's and pain and found that most informative. I plan >> to be reviewing many of those articles. The recent stem cell article was >> also very interesting. >> >> I would appreciate any input from others as to their experiences and >> thoughts on the little bit of information that I have given here. >> >> Thanks, Linda >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn