 |
 |
Thanks so much for your detailed response. This disease certainly presents many dilemmas. I think I need to start journaling frequently to see if I can sort my issues any better at this point. I strongly suspect that the intensity and duration of pain will dictate stronger measures for me as well. So glad to hear that you are feeling a little better each day now. That has to instill some hope. I have to appreciate that I was over 65 when I was diagnosed so that my same-age friends have many issues with aches and pains, too. I'm sure some of mine are related to sliding over the hill. My favorite quote is "old age ain"t for sissies". Never a truer statement made. Linda ----- Original Message ----- From: "[log in to unmask]" <[log in to unmask]> To: <[log in to unmask]> Sent: Friday, October 05, 2012 5:14 PM Subject: Re: back, neck and leg pain > Hi Linda, > My name is Linda too, and when i read the first few sentences of your > message I had to stop and think ....did I write this? > I've received the same diagnosis of spinal stenosis (narrowing of the > spinal column and degenerative disc disease. i've had pain in different > areas in the past, but it was fairly controlled with physical therapy. the > last year though pain in my leg, fom the sciatica nerve just kept getting > worse to the point that it was becoming too painful to walk. lik e you i > wanted to avoid surgery and tried PT again, and when thatt didn't work, i > tried 2 epidural shots of cortisone, which also didn't help. So about a > month ago had surgery to remove bone fragments that were irritating the > nerve. > The surgery did worsen my PD symptoms, and i think the PD is making > recovery longer and more difficult, but i start another round of PT next > week and hopefully will get back to where i was. I think its best to try > other treatments first, but i reached the point where surgery was the > only option. i couldn't live wiith the pain anymore. i should also > mention that i've had PD for 17 years. Five weeks now post surgery, the > pain in my leg is much better, but i'm getting pains in new places. though > not as intense, ad i'm having more troublr walking. the doc says this is > due to stirring up other nerves in the surgery and it could take a few > more months for a full recovery. i am feeling a little better each day. > A lot of people with parkinson's seem to have pain problems.it's only > recently that tthis has been recognized. PDF has a very good webcast > discussion about pain. see > http://www.pdf.org/en/parkinson_briefing_understanding_pain > > hope this is some help to you > linda > www.pdpipeline.org > > ---------- Original Message ---------- > From: Linda <[log in to unmask]> > To: [log in to unmask] > Subject: back, neck and leg pain > Date: Thu, 4 Oct 2012 14:09:08 -0800 > > I would appreciate some input from other people with Parkinson's in regard > to the issue of pain. I have been told that I have degenerative disk > disease with a narrowing of the spinal column in the lumbar area. I was > also told that my left knee was bone on bone in 2006 and would need a > replacement sometime in the future. I was diagnosed with fibromyalgia in > 1997's and diagnosed with Parkinson's disease in May of 2010. > > It seems like there are so many factors that I am very hesitant to do or > have done any invasive measures such as knee replacement or back surgery > because I feel like it will not resolve enough of the pain issues to be > worth the risk and the attempted rehabilitation. The neurologist I have > just been seeing recently made the statement that the pain would not be > from Parkinson's. I'm not sure if she thinks that pain is not a part of > the disease or that she feels that the pain I described wouldn't be from > the disease. My current back pain appeared to become acute after swimming > a few days in a row. It felt very good in the water to twist and turn my > body but after that, movement became more difficult than my pain level > increased radically. > > It was very helpful to be on this list and receive the information about > briefings through the Parkinson's organization. I was able to get the > briefing on Parkinson's and pain and found that most informative. I plan > to be reviewing many of those articles. The recent stem cell article was > also very interesting. > > I would appreciate any input from others as to their experiences and > thoughts on the little bit of information that I have given here. > > Thanks, Linda > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn