Jerry
apparently the Fox Foundation has already been contacted re this research.
I was going to suggest it be as it is hard to reinvent the wheel so to
speak. maybe other foundations could be contacted by those who can still
speak.
I think you need to post all the info you have on this on PIEN.
It is difficult to get people to write letters let alone give money unless
you are a celebrity.
I'll be glad to write if I have more info on ganglioside. what is it
exactly?. when were Phases I and II done and what were the results? what
were the reasons given by the Fox Foundation for not supporting it
financially? who should request for support be directed to? PAN, NPF,
etc.?
-----Original Message-----
From: MyFirstname Mylastname
Sent: Monday, March 04, 2013 5:25 AM
To: [log in to unmask]
Subject: Re: Fw: ganglioside cure for PD?
Rayilyn
Everything I have found to read on this subject leads me to believe that
this drug therapy is the farthest thing along to achieving disease
modification than anything else out there including gene therapy and stem
cell
research. Why there is not more excitement about it dumbfounds me. As
such I
called Dr Schneider to ask if we could meet to discuss funding efforts. He
consented and we did. Consequently we are at the beginning stage of
planning a campaign to raise money for his research efforts. Why don't we
attempt
some kind of national effort for those who agree and get behind this
promising therapy. Sitting back complacently and doing nothing has never
sat
well with me. I am simply a PWP looking for a cure.
Jerry
In a message dated 3/4/2013 00:09:12 Mountain Standard Time,
[log in to unmask] writes:
From: Rayilyn Brown
Sent: Saturday, March 02, 2013 10:31 AM
To: parkinsn
Subject: ganglioside cure for PD?
discussion deals with funding issue
http://neurotalk.psychcentral.com/archive/index.php/t-176081.html
Ray
Rayilyn Brown
Past Director AZNPF
Arizona Chapter National Parkinson Foundation
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