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Ray, yes I do have tremor. It started out as almost nothing, but it has slowly but thoroughly ensconced itself in my life after almost 12 years. These days I am wondering just how much more of it I can take. Tremors have developed in my legs and feet, and this makes it difficult to do many things, from standing to walking to operating the pedals on my keyboards. And it has gotten to the point that I can hardly hold a coffee in my hand without some of it escaping over a vibrating rim. Your vocal problems are a worry to me, because I sing a bit with the band. I'd hate to think that I would have to give up singing harmonies, and I do sing lead on a song every once in a while.

I'm also concerned that the DBS would give me even more depression than I have now. I understand there are a couple of different targets in the brain, and at least one of them causes increased depression. I look at the people I have met who have had DBS, and this is a guess, but they seem a bit cloudy upstairs. You, Ray, are not included. Are there a significant number that have lost mental acuity after having DBS? Is there a way to determine if it's too early or too late to have this procedure? Does DBS help manage other symptoms like slowness of gait or fatigue or difficulty swallowing or chronic runny nose? (one of my favorites!)

Thank you for keeping the info coming, Ray.

Rick

-----Original Message-----
From: Parkinson's Information Exchange Network [mailto:[log in to unmask]] On Behalf Of Rayilyn Brown
Sent: Thursday, February 28, 2013 9:10 PM
To: [log in to unmask]
Subject: Benefits of DBS/Rick

As you well  know every PWP is different, but I can assure you DBS stops tremors, my worst symptom.

As  Laureen has pointed out re the other symptoms, it is difficult to tell  if continued progression is due to PD or DBS.  This is especially true with speaking difficulty  -  mine began after DBS 10 years ago.

Laureen and I have had PD 17 years, but she is much younger than me and can take PD meds, which I can’t.   I have to use an  electric wheelchair, she uses a cane I believe.

The decider  may whether you have tremor or not.

good  luck.


Ray
Rayilyn Brown
Past Director AZNPF
Arizona Chapter National Parkinson Foundation

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