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YOU ARE SO RIGHT!!!!! WE REACHED THE SAME CONCLUSIONS AS YOU  DID AND WE ARE
 GOING TO GIVE THE CONDOM CATHATHER---A TRY.  PARKINSON, OF  COURSE IS THE 
REAL PROBLEM--HE IS SO SLOW AND CANNOT REACH HIS URINAL FAST  
ENOUGH----ANYMORE. 
 
 
In a message dated 6/20/2013 11:00:19 P.M. Pacific Daylight Time,  
[log in to unmask] writes:

Hi  Margaret,

I'm not a health care professional, but for what it's worth,  here is my
response to your situation.

Have diapers actually caused  sores, or is this something the cg thinks
MIGHT happen? If the latter, then  why not give it a try?

And what's the problem with the external  catheter? Infection? Is that also
a MIGHT happen issue that could be  avoided with care and vigilance?

Sounds like the doctors and the cr are  saying "no" but offering no
solutions.

In the meantime, it's you and  your husband struggling with wet clothing and
bedding, and losing healing,  restorative sleep. There are health
consequences of sleep deprivation—no  maybe about it.

Can you tell them loud and clear that you need help. If  they won't address
your needs, find doctors and a cg who will work with  you. If you have other
family members who can help you navigate this  situation, enlist their aid.

It is so important that you take care of  yourself.

Best wishes,

Kathleen




On 19 June  2013 15:07, <[log in to unmask]> wrote:

> DEAR RAY,
>  WHAT DO OTHER PARKINSON MEN AND WOMEN DO ABOUT THE URINE   INCONTENANCE
> PROBLEM DURING THE NIGHT HOURS, IN PARTICULAR---TWO  DOCTORS  HAVE SAID
> "NO" TO
> THE EXTERNAL CATATHER AND  ANOTHER DOCTOR AND CAREGIVER  HAS SAID "NO" TO
> DIAPERS, DUE TO  PRESSURE SORES,  AT NIGHT????
>
> I KNOW HE DOES NOT HAVE A  BLADDER INFECTION OR KIDNEY  PROBLEM--I KNOW
> -IT'S PARKINSON AND  JUST BEING TOO SLOW TO GET UP TO GET  TO HIS CHAIR 
SIDE
> URINAL OR  THE BATHROOM, AT NIGHT  WHEN HIS  BRAIN WAKES HIM UP AND  TELLS
> HIM HE
> NEEDS TO URINATE-----BUT IF THE DOCTORS  ARE  SAYING "NO" TO EITHER THE
> EXTERNAL CATATHER OR THE  DIAPERS---------WHAT ELSE  IS THERE TO DO?  WHAT
> DO  YOU
> HEAR FROM THE  OTHER PARKINSON PAITENTS  THAT HAVE THIS  EVIDENTLY
> FAIRLY--COMMON PROBLEM WITH LATE TERM   PARKINSON?
>
> THANKS,
> MARGARET
>
>
> In  a message dated 6/18/2013 11:00:09 P.M. Pacific Daylight Time,
>  [log in to unmask] writes:
>
>
>  
http://www.popsci.com/science/article/2013-06/artificial-sweetener-could-hel
>  p-treat-parkinsons-disease
> Ray
> Rayilyn  Brown
>  Past Director AZNPF
> Arizona Chapter National Parkinson   Foundation
>
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