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Good luck, Margaret! Hope the condom catheter works for him. Kathleen On 21 June 2013 12:20, <[log in to unmask]> wrote: > YOU ARE SO RIGHT!!!!! WE REACHED THE SAME CONCLUSIONS AS YOU DID AND WE > ARE > GOING TO GIVE THE CONDOM CATHATHER---A TRY. PARKINSON, OF COURSE IS THE > REAL PROBLEM--HE IS SO SLOW AND CANNOT REACH HIS URINAL FAST > ENOUGH----ANYMORE. > > > In a message dated 6/20/2013 11:00:19 P.M. Pacific Daylight Time, > [log in to unmask] writes: > > Hi Margaret, > > I'm not a health care professional, but for what it's worth, here is my > response to your situation. > > Have diapers actually caused sores, or is this something the cg thinks > MIGHT happen? If the latter, then why not give it a try? > > And what's the problem with the external catheter? Infection? Is that also > a MIGHT happen issue that could be avoided with care and vigilance? > > Sounds like the doctors and the cr are saying "no" but offering no > solutions. > > In the meantime, it's you and your husband struggling with wet clothing > and > bedding, and losing healing, restorative sleep. There are health > consequences of sleep deprivation—no maybe about it. > > Can you tell them loud and clear that you need help. If they won't address > your needs, find doctors and a cg who will work with you. If you have > other > family members who can help you navigate this situation, enlist their aid. > > It is so important that you take care of yourself. > > Best wishes, > > Kathleen > > > > > On 19 June 2013 15:07, <[log in to unmask]> wrote: > > > DEAR RAY, > > WHAT DO OTHER PARKINSON MEN AND WOMEN DO ABOUT THE URINE INCONTENANCE > > PROBLEM DURING THE NIGHT HOURS, IN PARTICULAR---TWO DOCTORS HAVE SAID > > "NO" TO > > THE EXTERNAL CATATHER AND ANOTHER DOCTOR AND CAREGIVER HAS SAID "NO" TO > > DIAPERS, DUE TO PRESSURE SORES, AT NIGHT???? > > > > I KNOW HE DOES NOT HAVE A BLADDER INFECTION OR KIDNEY PROBLEM--I KNOW > > -IT'S PARKINSON AND JUST BEING TOO SLOW TO GET UP TO GET TO HIS CHAIR > SIDE > > URINAL OR THE BATHROOM, AT NIGHT WHEN HIS BRAIN WAKES HIM UP AND > TELLS > > HIM HE > > NEEDS TO URINATE-----BUT IF THE DOCTORS ARE SAYING "NO" TO EITHER THE > > EXTERNAL CATATHER OR THE DIAPERS---------WHAT ELSE IS THERE TO DO? > WHAT > > DO YOU > > HEAR FROM THE OTHER PARKINSON PAITENTS THAT HAVE THIS EVIDENTLY > > FAIRLY--COMMON PROBLEM WITH LATE TERM PARKINSON? > > > > THANKS, > > MARGARET > > > > > > In a message dated 6/18/2013 11:00:09 P.M. Pacific Daylight Time, > > [log in to unmask] writes: > > > > > > > > http://www.popsci.com/science/article/2013-06/artificial-sweetener-could-hel > > p-treat-parkinsons-disease > > Ray > > Rayilyn Brown > > Past Director AZNPF > > Arizona Chapter National Parkinson Foundation > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: > > mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: mailto: > > [log in to unmask] > > In the body of the message put: signoff parkinsn > > > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto: > [log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn