I sometimes wonder if news editors read their own papers. It's obvious they've a low opinion of their readers.
> Date: Sun, 23 Jun 2013 20:14:00 -0700
> From: [log in to unmask]
> Subject: Potential New Drug Treatment
> To: [log in to unmask]
>
> Jackie
>
> you are so right....that was a poor choice I made for a subject line.
> to keep it short and to the point I couldn't find the word "potential" last
> night.
>
> to my knowledge it is all potential now, even though there's lots going on.
> its disappointing, isn't it?
>
> being desperate, I'm getting some gum with Mannitol in it tomorrow to try
> out.
>
> -----Original Message-----
> From: Jackie Christensen
> Sent: Saturday, June 22, 2013 5:43 AM
> To: [log in to unmask]
> Subject: Re: New Drug Treatment
>
> Ray -- Thank you for the valuable service you provide by finding these news
> stories. It is exciting to learn about what scientists are doing, and I
> know that you are just repeating the language used by the media in your
> subject line. However, I feel that the articles you post you need to be
> placed in some context.
>
> For example, despite the fact that the Medical Daily characterizes the
> compound as a treatment, the Scripps news release says "Now the team’s new
> dual inhibitor *will need to be optimized* [my emphasis]for potency, high
> selectivity (which reduces off-target side effects) and bioavailability *so
> it can be tested in animal models* [my emphasis again] of Parkinson’s
> disease." This means that it is not even really a drug yet in the way I
> believe most patients think of them. ("Drug = medication = a pill or a
> patch or an injectable solution that I could take right now.") The compound
> also hasn't even been tested on animals in a form similar to anything that
> MIGHT one day be tested on humans.
>
> The media love to sensationalize things to increase their
> reader-/listener-/viewership. It is difficult to change their culture but
> we can help our fellow Parkies (my term) to think and read news stories
> critically, rather than merely swallowing them whole..
>
> Again, I really appreciate what you are doing. I guess I'm asking you to do
> a little bit more, whether it is to give a direct link to the original
> study, or to preface the news stories like "Keep in mind that this is a
> news story, not a scientific journal article about a product that is
> readily available, so take what you read in it with a grain of salt."
>
> Just my two cents' worth,
>
> Jackie
>
>
> On Fri, Jun 21, 2013 at 8:19 PM, Rayilyn Brown <[log in to unmask]> wrote:
>
> > developed but not identified by Scripps scientists.. Mannitol also
> > mentioned.
> >
> >
> > http://www.medicaldaily.com/articles/16763/20130621/parkinsons-disease-drug-treatment-degenerative-disorder.htm
> >
> > Ray
> > Rayilyn Brown
> > Past Director AZNPF
> > Arizona Chapter National Parkinson Foundation
> >
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>
>
>
> --
> Jackie Hunt Christensen
> National Parkinson Foundation Minnesota board of directors
> State Director, Parkinson's Action Network
> Parkinson's disease and environmental health activist and author
> * Note all organizational positions are volunteer
>
> cell phone: 612-325-0372
> e-mail: [log in to unmask]
> weblinks: National Parkinson Foundation
> Minnesota<http://www.parkinsonmn.org>
> Parkinson's Action Network <http://www.parkinsonsaction.org>
>
> "Compassion is not weakness, and concern for the unfortunate is not
> socialism."
> ~Hubert H. Humphrey
>
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