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Autumn 2004. My neurologist says I'm atypical (and wrote in my notes that I'm an awkward personality - true - he didn't know I can read upside-down !) > Date: Mon, 10 Mar 2014 18:02:10 -0700 > From: [log in to unmask] > Subject: Re: Blog > To: [log in to unmask] > > Amanda, when were you first diagnosed? I'm sure I can speak for others when > I say we're happy to be of help and that your British wit is essential to > the existence of this List. I think your sense of humor has helped many PWP > too. > > -----Original Message----- > From: A Phillips > Sent: Monday, March 10, 2014 2:28 AM > To: [log in to unmask] > Subject: Re: Blog > > Unable to communicate ? > From the woman who (along with the others in the list) saved my sanity > (possibly stopped me suiciding) when first diagnosed. > Amanda > > Date: Sun, 9 Mar 2014 19:41:13 -0700 > > From: [log in to unmask] > > Subject: Re: Blog > > To: [log in to unmask] > > > > Sharon > > > > Your family will never understand because it is impossible to describe it. > > > > my first 5 years were great and even after DBS in 2003 I could do > > things. > > Now going on year 18 I'm in real trouble. I never knew talking, writing, > > doing anything could be so painful. Communication is so hard, it affects > > my whole body. I mean everybody can talk, right? I once said that PD > > is like rigor mortis without benefit of death, and I stand by that. > > > > But I look good, people say, so what could be wrong? At 78 I'm in good > > shape for the shape I'm in. > > > > -----Original Message----- > > From: Sharon > > Sent: Saturday, March 08, 2014 11:00 AM > > To: [log in to unmask] > > Subject: Re: Blog > > > > I'm glad to join in. Have had PD for a while although I'm still reasonably > > we'll. however, I need somewhere to air my feeling as my family doesn't > > seem > > to understand how I look at my possible future. I deserve this because my > > Father lived with PD for 20+ years and I never really understood what he > > was > > experiencing. I thought it was just aging and resented him because he > > never > > tried to do anything to help himself. Didn't know about abulia (the lack > > of > > motivation that was part of his longstanding depression). As you surely > > know > > its impossible to foresee the future and some of us will stay relavitively > > well, others will go on a never ending downhill journey that is not > > pretty. > > I think they want me to stay positive but I am being realistic in my > > fears, > > I believe. Thet don't seem to want to understand when I am experiencing > > something that I know is part of the disease and they think I am > > overreacting. They scoff at my double vision, crazy dreams, soft hoarse > > voice, shaky illegible handwriting, etc. > > > > Sent from my iPad > > > > > On Mar 7, 2014, at 6:44 PM, A Phillips <[log in to unmask]> > > > wrote: > > > > > > I've started a blog; if anyone is interested it's at > > > http://phillips-writes.blogspot.co.uk/ > > > Not much on it yet but am working on it. > > > The blog will probably just be about whatever I happen to feel like > > > writing about. > > > > > > Amanda Phillips > > > > > > ---------------------------------------------------------------------- > > > To sign-off Parkinsn send a message to: > > > mailto:[log in to unmask] > > > In the body of the message put: signoff parkinsn > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: > > mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: > > mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn