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Thanks. You should be able to comment now, sorry about that, it was set to allow only "registered members" to comment. More entries to come. > Date: Thu, 13 Mar 2014 02:59:00 -0500 > From: [log in to unmask] > Subject: Re: Blog > To: [log in to unmask] > > The blog below is fantastic!i sure enjoyed reading the two entries. I tried to post a comment but don't think it saved it, not really sure how to do it? Any suggestions would be wonderful. Please keep it up, thank you, > > Fondly sent to you from: Patti > > On Mar 10, 2014, at 2:19 PM, [log in to unmask] wrote: > > > MY HUSBAND AT 92 SUFFERING FROM ALL THE SAME THINGS----BUT--- THERE IS > > LOTS OF HELP THRU THE PARKINSON ASSOCIATION AND NOW TELEHEALTH PROGRAMS. > > LOOK FOR ALL THE INFORMATION REGARDING PARKINSON ON BOTH THE VETERAN > > ADMINSTRATION AND MEDICARE WEB SITES. IT'S THERE---SO DO NOT GIVE UP UNTIL YOU > > FIND IT AND ENROLL. > > > > MARGARET (HIS WIFE) > > > > > > > > > > In a message dated 3/10/2014 2:28:20 A.M. Pacific Daylight Time, > > [log in to unmask] writes: > > > > Unable to communicate ? > > From the woman who (along with the others in the list) saved my sanity > > (possibly stopped me suiciding) when first diagnosed. > > Amanda > >> Date: Sun, 9 Mar 2014 19:41:13 -0700 > >> From: [log in to unmask] > >> Subject: Re: Blog > >> To: [log in to unmask] > >> > >> Sharon > >> > >> Your family will never understand because it is impossible to describe > > it. > >> > >> my first 5 years were great and even after DBS in 2003 I could do > > things. > >> Now going on year 18 I'm in real trouble. I never knew talking, > > writing, > >> doing anything could be so painful. Communication is so hard, it > > affects > >> my whole body. I mean everybody can talk, right? I once said that PD > >> is like rigor mortis without benefit of death, and I stand by that. > >> > >> But I look good, people say, so what could be wrong? At 78 I'm in good > >> shape for the shape I'm in. > >> > >> -----Original Message----- > >> From: Sharon > >> Sent: Saturday, March 08, 2014 11:00 AM > >> To: [log in to unmask] > >> Subject: Re: Blog > >> > >> I'm glad to join in. Have had PD for a while although I'm still > > reasonably > >> we'll. however, I need somewhere to air my feeling as my family doesn't > > seem > >> to understand how I look at my possible future. I deserve this because > > my > >> Father lived with PD for 20+ years and I never really understood what he > > was > >> experiencing. I thought it was just aging and resented him because he > > never > >> tried to do anything to help himself. Didn't know about abulia (the lack > > of > >> motivation that was part of his longstanding depression). As you surely > > know > >> its impossible to foresee the future and some of us will stay > > relavitively > >> well, others will go on a never ending downhill journey that is not > > pretty. > >> I think they want me to stay positive but I am being realistic in my > > fears, > >> I believe. Thet don't seem to want to understand when I am experiencing > >> something that I know is part of the disease and they think I am > >> overreacting. They scoff at my double vision, crazy dreams, soft hoarse > >> voice, shaky illegible handwriting, etc. > >> > >> Sent from my iPad > >> > >>> On Mar 7, 2014, at 6:44 PM, A Phillips <[log in to unmask]> > >>> wrote: > >>> > >>> I've started a blog; if anyone is interested it's at > >>> http://phillips-writes.blogspot.co.uk/ > >>> Not much on it yet but am working on it. > >>> The blog will probably just be about whatever I happen to feel like > >>> writing about. > >>> > >>> Amanda Phillips > >>> > >>> ---------------------------------------------------------------------- > >>> To sign-off Parkinsn send a message to: > >>> mailto:[log in to unmask] > >>> In the body of the message put: signoff parkinsn > >> > >> ---------------------------------------------------------------------- > >> To sign-off Parkinsn send a message to: > > mailto:[log in to unmask] > >> In the body of the message put: signoff parkinsn > >> > >> ---------------------------------------------------------------------- > >> To sign-off Parkinsn send a message to: > > mailto:[log in to unmask] > >> In the body of the message put: signoff parkinsn > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: > > mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn