 |
 |
I am one of the very lucky ones to be totally off my meds after DBS, so my only "off" times are when/if I turn my stimulator down very low or off. Then, of course, all the not so lovely parkinson symptoms show up. Instantly. They disappear as quickly when I turn the voltage back up to a comfortable range. I got the rechargeable battery, so anticipate replacement in about 9 years which is also good news. Carol On 2014-04-20, at 9:02 AM, A Phillips wrote: > What about off times ? I'm being threatened with dbs if the consultant ever gets around to seeing me - I was due in January. > >> Date: Sat, 19 Apr 2014 06:28:33 -0500 >> From: [log in to unmask] >> Subject: Re: changing batteries for DBS >> To: [log in to unmask] >> >> I am new to DBS (Jan 30/14) but until I titrated off my meds I was getting a lot of dyskinesias related to the med and charge combo. Have you tried turning down your voltage? Or turning it off? >> >> DBS is a life changer for sure. No meds = no dyskinesia, minimal if any tremor, no rigidity, and against all odds, apparently minimal balance issues. >> >> Carol Loyd >> >> >> On 2014-04-19, at 3:15 AM, Janet Gervase wrote: >> >>> Good morning.. It is 4 am and i have been up all night. I had DBS surgery three years ago and my neurologist told me I needed to get new batteries before they would run out. So my surgery was yesterday and all went well or so I thought. I left the hospital feeling pretty good and before I left the medtronics representative put in the settings I had previously..About 10 last night I started get get dyskinesias in my left leg. Through the night they got stronger and stronger and into my left arm and hand. Now i know why I got DBS. Can't believe how bad it is and my meds are doing nothing. Of course as soon it is morning I am calling the medtronics salesman, my neurologist and the surgeon. My husband wanted to take me to the ER but what are the chances that someone can program you there. Plus you don't have the luxury of moving around. I hope they can fix it. I could not live the rest of my life like this. MY question is has anyone had a similar experience >>> with new batteries? Of course this is a holiday weekend. Hope I can get someone. ( 62/13.) >>> Janet >>> >>> >>> -----Original Message----- >>> From: A Phillips <[log in to unmask]> >>> To: PARKINSN <[log in to unmask]> >>> Sent: Sat, Apr 19, 2014 2:00 am >>> Subject: Neat travel program (don't be put off by the title) >>> >>> >>> Especially Ray - I know you like travel stuff. >>> >>> Try this - http://www.bbc.co.uk/iplayer/episode/b0116ly6/A303_Highway_to_the_Sun/ >>> >>> English countryside for real, not just the bits we like the tourists to see. >>> >>> I've watched it twice and am going to watch it again. >>> Amanda >>> >>> ---------------------------------------------------------------------- >>> To sign-off Parkinsn send a message to: mailto:[log in to unmask] >>> In the body of the message put: signoff parkinsn >>> >>> >>> >>> ---------------------------------------------------------------------- >>> To sign-off Parkinsn send a message to: mailto:[log in to unmask] >>> In the body of the message put: signoff parkinsn >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn