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I take 25/100's of generic Sinemet up to a maximum of 6/day. John, I take 25/100's of generic Sinemet up to a maximum of 6/day. Sometimes 2,2,2; sometimes 3,2; sometimes other combinations. I must tell you, though, that I had DBS in 2008, which, fortunately, is still working for me. Marti Coleman On Saturday, June 14, 2014 2:00 AM, John <[log in to unmask]> wrote: 28 years and you only take 2 Sinemet per day? What strength are they? My Sue was on 6 50/200's per day until we thought it was a bit too much for her, and now takes 6 25/100's per day. John ----- Original Message ----- From: "Marti Coleman" <[log in to unmask]> To: <[log in to unmask]> Sent: Thursday, June 12, 2014 4:45 AM Subject: Re: transplanted fetal dopamine neurons appear healthy after 14 yrs > Rayilyn, > I've had PD for 28 yrs. and only know what helps me, but dyskinesias for > me is totally eliminated by taking one amantadine tab/day in conjunction > with carbidopa-levadopa in the morning. I've tried taking more than one > amantadine (for instance, with my afternoon dose of carb/leva) but there > is no additional help there. I know some people have said amantadine > causes hallucinations, but I have never suffered from those. I don't know > if you have ever tried amantadine, but thought I'd put my two cents worth > in in case you haven't. > Marti Coleman > > > On Thursday, June 12, 2014 2:10 AM, Rayilyn Brown <[log in to unmask]> > wrote: > > > > I had DBS 11 years ago and am really struggling now. Carbidopa-Levodopa > provides little help plus dyskinesias. > I don't even think about a cure any more, just some help! > > -----Original Message----- > From: Maryse Schild > Sent: Wednesday, June 11, 2014 3:24 AM > To: [log in to unmask] > Subject: Re: transplanted fetal dopamine neurons appear healthy after 14 > yrs > > dyskinesias with pigcells?. Someone here reported many years after having > them inserted ( TR7driver) but I donīt remember his saying he had > dyskinesias. > I donīt bet on DBS for it is too empirical. > maryse > > > On Tue, Jun 10, 2014 at 3:41 PM, Mary Ann Ryan <[log in to unmask]> > wrote: > >> My understanding was that the pig cells were not successful in the long >> term and caused increased dyskinesia - which has been the problem with >> transplanted neuro cells. I don't think that stem cells are going to be >> the answer in PD - because of their scatter-shot effect. Too many >> functions are compromised with too few successes. I think that brain >> stimulation (refined) will eventually prove to be the best treatment. >> >> Mary Ann >> >> -----Original Message----- >> From: Parkinson's Information Exchange Network [mailto: >> [log in to unmask]] On Behalf Of Maryse Schild >> Sent: Monday, June 9, 2014 12:00 PM >> To: [log in to unmask] >> Subject: Re: transplanted fetal dopamine neurons appear healthy after 14 >> yrs >> >> > This good news needs support from everywhere. Have we known this >> > after >> > 14 years? >> >> >> Years ago we also had some good reports about transplanted pig cells a >> long tie after. What happened to them? >> >> maryse >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: mailto: >> [log in to unmask] >> In the body of the message put: signoff parkinsn >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: mailto: >> [log in to unmask] >> In the body of the message put: signoff parkinsn >> > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn