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But how do you get them to LISTEN ? Using a megaphone wouldn't be popular. Amanda > Date: Mon, 25 Aug 2014 08:50:00 -0700 > From: [log in to unmask] > Subject: Re: stages of PD > To: [log in to unmask] > > When I was coordinator for the APDA, I was asked by a nurse to give a talk > to the nurses about how a person with PD has different needs than the > normal patient. THe Drs & nurses do not realize that a PD patient needs to > be kept on their med schedule, or there will be problems. I just had eye > surgery on Friday I had an extremely aggressive bacterial infection that > started eating up my eye..THis started in March. My Dr was great he said we > are going to WAR and kill this. After taking eye drops of different > medications, every two hours was quite an ordeal.. > My doctor was worried about doing the surgery because of me moving around > when examining me. THis was not all the time he saw me, but when I did come > in w/dyskinesia he said if you move that could be disastrous. So I told him > don't worry, my dentist puts me under. I told the dr & anesthesiologist I > needed to stay on my schedule of pills and it turned out > OK. It is up to us to tell the medical Dr,s nurses & technicians what we > need when in their care. > > > Arlette > > > -----Original Message----- > From: Parkinson's Information Exchange Network > [mailto:[log in to unmask]] On Behalf Of A Phillips > Sent: Saturday, August 23, 2014 4:13 PM > To: [log in to unmask] > Subject: Re: stages of PD > > Unless possibly you end up as one of those pointy little pebbles in > someboy's shoe ? > > You are communicating (but I do know what you mean). > > > Date: Fri, 22 Aug 2014 20:42:09 -0700 > > From: [log in to unmask] > > Subject: stages of PD > > To: [log in to unmask] > > > > it has occurred to me that responses to question of what health care > professionals should know about PD and PWP depends on stage of the disease > and effectiveness of drugs/treatment. > > > > For example, during first 5 years you would hardly know I had it whereas > last few years I'm frustrated at not being able to communicate my inability > to move and function effectively. > > > > Turning to stone is no fun. > > > > > > Ray > > Rayilyn Brown > > Past Director AZNPF > > Arizona Chapter National Parkinson Foundation > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn