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Sorry to send this way but previous post never showed (?) so i am trying resending it as a reply - thanks for your patience My name is John. I was diagnosed with PD in 2008 at age of 50. I've been following this listserv since then but have had little to contribute. I have been fighting the fight, best I could with exercise, diet and minimal medication. I have been able to continue working as a teacher, although it is getting harder; on feet all day - great; paperwork at computer all evenings and weekends - killing me. Alas, about 18 months ago I switched to a different neuro and started the Sinemet/Stalevo drill, which completely relieved my symptoms. As required dosing times have now dropped to about 2 1/2 hrs,however, my neuro has informed me "that it is time for DBS." Since I've only seen this neuro 4 times ( for a total of about 30 minutes) , the neuro has never seen me "off" and doesn't have time to discuss options, I feel that I need a 2nd opinion and possibly a new neuro. Therefore, I am reaching out to the listserv for advice. 1) I would especially appreciate recommendations for neuro in Buffalo,NY area . 2) Also thoughts, experiences on how to find best place for DBS in the region (Buffalo, Rochester, Cleveland, Toronto). Ray, I remember that you and quite a few other list members have mentioned loss of your voice as a major negative consequence to your DBS. Since I am a teacher, I have resisted the idea of DBS in the past because of this. Furthermore, I would have to take extended leave this year; since I am in a system that does not grant tenure, I sense that taking leave would mean no contract renewal. I was hoping that DBS would buy me a few more years at teaching. My family is suggesting that that opportunity is gone, that I need to focus all my efforts on my health as I prepare for the long, arduous fight ahead. They suggest that I go on leave, file for disability, get the DBS and use the time it buys me to focus on exercise and nutrition; they suggest that DBS only buys me a few years and it makes sense to concentrate on exercise, nutrition and family while I can. Any thoughts ? ________________________________ From: Rayilyn Brown <[log in to unmask]> To: [log in to unmask] Sent: Thursday, November 13, 2014 1:55 PM Subject: NuVet for people since starting my 16 year old Spike on NuVet this week his cataracts have started clearing up and after reading testimonials I have hopes for his allergies and cysts as well. Also, he is livelier, not sleeping as much. this is the first time I have seen something actually work. wish I had had it for my cataracts!! there is no cure for Parkinson’s and treatments are as bad as the disease. I tried a small bit of NuVet tablet before giving it to Spike and its not too bad. What do you say to my trying it for myself? Rayilyn Brown Past Director AZNPF Arizona Chapter National Parkinson Foundation ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn