Kathleen I am in a telehealth program called iCare and I think it might be helpful to other PWP. Although AZ is the only state that has it so far, I understand the VA does. It consists of a team of health care professionals, PCP docs, nurses, health coaches, pharmacists, social worker, who monitor sick seniors with daily BP readings, Lifeline Alerts, tablets for Skype-like video conferences between team and patients in home. I have a bracelet life alert device rather than standard necklace which automatically alerts help in case of a fall. Necklace interfered with my NTs. I don't use the tablet cause I can't talk well enough, but the health coach has been a godsend since I don't have a live-in CG and am alone. She has been my voice with problems re wheelchair, in home dental care, liaison with iCAre team, in-home pet euthanasia, etc. My neuro is just kind enough to correspond via email. I'm wondering if there is anything that can be done to make such services available to PWP. This is supposed to be "cutting edge" face of senior health care. -----Original Message----- From: Kathleen Cochran Sent: Thursday, March 05, 2015 9:00 AM To: [log in to unmask] Subject: Re: email vs. office visits Ray, my neuro also does email; his hospital is set up with a very user-friendly, effective system for online communication. It is great to know that I can contact him and I will hear back. I also find that having the email option makes me more likely to follow through with things we talked about. The system is good at promoting and supporting follow through, which is sadly lacking in the types of visits described by John. Does anyone else have thoughts or stories about online doctor-patient communications? Kathleen On Tuesday, March 3, 2015, Rayilyn Brown <[log in to unmask]> wrote: > I like my neuro because we correspond by email; office visits are really > an ordeal for me. I have a device from Medtronic to check my NT > batteries. She just prescribed Rytary for me which I am trying. > > -----Original Message----- From: John > Sent: Monday, March 02, 2015 1:20 PM > To: [log in to unmask] > Subject: Re: treatment that slows progression > > How true Amanda. When I take Sue to the Doctor (every three months at his > suggestion!) he says, "You're looking good today Sue." And we chat about > Carbidopa-Levodopa, he refills any other rx we need, and says, "see you in > 3 months" > > Last month, there were 12 people in waiting room when we arrived on time, > and we simply said sorry, we can't hang around, and left. They didn't > care, > and have not tried to re-schedule. > > John > > > > > -----Original Message----- > >> From: A Phillips <[log in to unmask]> >> Sent: Mar 1, 2015 9:45 AM >> To: [log in to unmask] >> Subject: Re: treatment that slows progression >> >> Yea, I was told the same thing ten years ago. >> Think my neurologist is bored seeing me - that's the trouble with chronic >> ills, the patients don't die or recover so keep coming back; tedious for >> medics! >> Amanda >> >> > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto: > [log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto: > [log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn