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From: Parkinson's Action Network (PAN) 
Sent: Friday, June 12, 2015 8:59 AM
To: [log in to unmask] 
Subject: ACT4PD Newsletter - 6/12/2015

            Parkinson's Action Network's weekly news delivered straight to your inbox.
           
           
              6/12/2015 
                  Latest from PAN

                  Challenges Face Defense Parkinson's Research Funding
                  PAN reported June 8, 2015 that Sen. John McCain (R-AZ) filed an amendment to a Defense policy bill that could have serious negative implications for medical research programs at the Department of Defense (DoD), like the Parkinson’s research program. Learn more.

                  Photos from Moving Day DC
                  Hundreds of participants took action on Sunday, June 7 as part of Moving Day® DC. Learn more.

                  Parkinson's Resource
                  The Peripatetic Pursuit of Parkinson Disease is an anthology of experiences from more than 100 people around the world who are passionate about living, as well as they realistically can, with Parkinson’s disease. PAN thanks the Parkinson’s Creative Collective for donating the book to attendees at the 2015 PAN Forum in March. Learn more.
                 
           
              
              
                  Stay Engaged

                  CALL NOW: Amendment Threatens Parkinson’s Research
                  Urge your Senators to vote no on Senate Amendment 1482, which would prohibit funding for medical research at the DoD unless research meets a very narrow definition of military relevance. Take action!

                  Ask Congress to Support Data Collection for Parkinson's Disease
                  Please ask your Members of Congress to support the Advancing Research for Neurological Diseases Act (H.R. 292/S. 849), which would create a data collection system for Parkinson’s and other neurological disorders. Take action!
                 
           
              
              
                  In The News

                  The following news articles are included for your information only and do not represent the views or policies of PAN.

                  Johnny Isakson, Georgia Senator, Says He Has Parkinson’s
                  New York Times | June 10, 2015
                  Senator Johnny Isakson, a Republican from Georgia, said on Wednesday that he has been receiving treatment for Parkinson’s disease, but added that the illness will not prevent him from seeking re-election next year. More.


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                  21st Century Cures Act: A Bold Bill to Save Lives
                  Medium.com | June 9, 2015
                  The 21st Century Cures Act is a breakthrough bill--a bold, nonpartisan piece of legislation designed to speed the delivery of life-saving drugs and devices to patients across the country. More.


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                  Utah's Parkinson's Registry Aims to Answer Tough Questions about the Disease
                  KSL.com (UT) | June 8, 2015
                  A diagnosis of Parkinson's disease is often traumatic and life changing. Now, a first-of-its-kind database in Utah could answer some of the tough questions about Parkinson's. More.


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                  Single Protein Causes Parkinson's Disease and Multiple System Atrophy
                  MedicalXpress.com | June 10, 2015
                  Several neurodegenerative disorders are caused by aggregates of a single protein known as alpha-synuclein. More.


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                  Parkinson's Patients Have Increased Options When it Comes to Treatment
                  Quad-City Times (IA) | June 5, 2015
                  A decade ago, Mike Cavanagh of Davenport was living in California when, as he put it, "My golf game went to hell." More.


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                  Losing a Parent to Parkinson's Disease
                  The Sydney Morning Herald (Australia) | June 6, 2015
                  In 2008, I answered the telephone to a faint yet familiar voice. It was my father, unable to form words. He'd been for tests. "Parkinson's disease," he finally said. "They say it's fatal." More.
                 
           
              

                      © 2015 Parkinson's Action Network | 1025 Vermont Avenue NW, Suite 1120 | Washington, DC 20005
                      PAN is a nonprofit 501(c) (3) organization. Contributions to PAN are tax-deductible to the extent allowed by law. Tax ID: #94-3172675.
                 
           
     

 
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