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Glad you're feeling a bit better, Ray. Re exercise - I took up riding a drift trike (great fun, look it up on youtube) - it does help fitness, but I gave myself tendonitis in both wrists from the extra strain on my arms - you basically have a low saddle and reach up for the handlebars. Scares small dogs and nervous people, cos it's got rollers instead of back wheels and makes one heck of a noise ! practical side is you can't fall off. Whee ! Stuff growing old with dignity.... Amanda > Date: Mon, 17 Aug 2015 18:58:43 -0700 > From: [log in to unmask] > Subject: a tough month > To: [log in to unmask] > > below is cc of email sent to my new neuro. I had surgery Aug 7 to replace my NS batteries; one had died and I was a mess. > > From: Rayilyn Brown > Sent: Monday, August 17, 2015 6:48 PM > To: Ming-Jai Liu > Cc: Shirley S Knox > Subject: Parkinson's Treatment > > thanks for the interesting book and the time you spent programming me Thursday. altho I’m still very tired I have less pain and dystonia, am slowly resuming my former low level of functioning. > > the book: > re “timing”, unlike most Parkies have never found it to be critical as I don’t have on/off experience with meds. years ago after my first 1/2 dose of Sinemet I thought “this is going to be great” I felt “normal”, but never again. > > re “anxiety”” when I had ovarian cancer treatment I developed panic attacks due to chemo and carried valium with me for a bit in case. 1/2 a pill seems to help now when I go to doc appts now as I don’t have panic attacks or agoraphobia anymore, but my whole body gets like a clenched fist > > re “exercise” it definitely helps, for past 3 years have done up to 2 hours daily of motorized cycling. > > re “optogenetics”- sounds interesting. I think “Love and light” on people, animals and problems, so the idea of light as a treatment is fascinating to me! > > thanks again, and love and light on you, your patients and practice Dr. Liu. > > Ray > Rayilyn Brown > Past Director AZNPF > Arizona Chapter National Parkinson Foundation > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn