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yes, trauma and stress, physical and emotional, make PD worse. My mom died in Aug 2003 between my 2 DBS surgeries - I sent you my DBS article separately - she had a stroke a year earlier and I had been trying to help her. I was thinking maybe your fall was due to PD. Im looking up troponin my voice is awful and have to communicate by email with my neuro -----Original Message----- From: N P Sent: Thursday, September 03, 2015 5:30 AM To: [log in to unmask] Subject: Re: HAND PROBLEM RAYILYN, I WAS THINKING THIS MORNING ABOUT THE 'TIMELINE' IN REGARDS TO THE DETERIORATION OF MY HEALTH. PRIOR TO 7/2011, I WAS TOTALLY FINE AND QUITE STRONG. IN JULY OF 2011 I MOVED INTO MY MOTHER'S HOUSE TO BECOME HER 24-HOUR CAREGIVER. I TOOK CARE OF MOM 24/7 UNTIL SHE PASSED IN 2/2012. I HAD TO TAKE CARE OF THE FUNERAL ARRANGEMENTS TOO. MY MOM GAVE ME FULL RESPONSIBILITY FOR HER HEALTH CARE VIA A POWER OF ATTORNEY AND THEN AFTER SHE PASSED I HAD FULL RESPONSIBILITY TO ADMINISTER THE ESTATE. AFTER MOM PASSED, I HAD TO CLEAR OUT 45-YEARS WORTH OF ACCUMULATION FROM HER HOUSE AND THEN TOTALLY CLEAN AND RENOVATE IT ALL BY MYSELF. I AM ONE OF 6 KIDS IN THE FAMILY BUT MY SIBLINGS WERE BASICALLY WAITING WITH THEIR HANDS OUT WHILE I DID ALL THE WORK. I FINALLY FINISHED GETTING MOM'S HOUSE READY TO PUT IT ON THE MARKET AND HAD TO PUT IT UP FOR SALE IN 6/2013. DURING THAT PERIOD OF TIME THAT I WAS FIXING UP MOM'S HOUSE, I WAS ALSO TAKING CARE OF MY OWN HOUSE. I HAD REALLY SLOWED DOWN THEN - I WALKED SLOW AND STARTED TO FALL. MY 'BIG ACCIDENT' HAPPENED IN 11/2013 AND WHAT HAD HAPPENED IS THAT I GOT OUT OF BED ONE NIGHT TO GET SOME COUGH MEDICINE BUT WAS SUPER COLD. I WAS TRYING TO PUT MY ROBE ON AND IN THE PROCESS SAT ON THE ARM OF A CHAIR. I FELL INTO THE CHAIR AND THEN ONTO THE FLOOR WHERE I LAID ON MY LEFT SIDE FROM FRIDAY NIGHT UNTIL NOON ON SUNDAY WHEN THE PARAMEDICS FOUND ME. BY THE TIME THEY CAME, I WAS ALREADY ON THE 'OTHER SIDE' - HAD HALLUCINATIONS, ETC. I WAS ADMITTED TO THE HOSPITAL BECAUSE OF ELEVATED TROPONIN LEVELS AND SPENT A WEEK THERE. I HAD BURNS ON MY HEAD FROM THE NEARBY RADIATOR AND BURNS ON MY ELBOW, HIP AND EYELID FROM 3 DAYS OF RUG BURN WHEN I KEPT TRYING TO GET UP. I THEN HAD TO SPEND 30 DAYS IN A NURSING HOME - AN EXPERIENCE THAT I DON'T EVER WANT TO REPEAT. I HAVE BEEN RECUPERATING SINCE THAT TIME AND AM MUCH STRONGER NOW BUT AM NOWHERE NEAR AS STRONG AS I HAD BEEN BEFORE I MOVED IN TO TAKE CARE OF MOM. WHAT ARE YOU REFERRING TO WHEN YOU SAID THAT YOU HAD YOUR BATTERIES REPLACED? I HAVE SEEN 2 MOVEMENT DISORDER SPECIALISTS. I THINK I WOULD LIKE TO FIND A FEMALE NEUROLOGIST THOUGH BECAUSE MAYBETHEY WOULD BE EASIER TO COMMUNICATE WITH. I LIVE IN CHICAGO. NANCY > Date: Wed, 2 Sep 2015 23:39:32 -0700 > From: [log in to unmask] > Subject: Re: HAND PROBLEM > To: [log in to unmask] > > Nancy > > I had botox for dystonia in my left leg during my first 7-8 years of PD, > but didn't think it helped so I stopped the injections. > > I don't think dystonia necessarily affects an entire hand or limb. > This > year the middle finger of my left hand is twisted and painful, but > getting > my batteries replaced and reprogrammed has helped somewhat. > > You and I are at different stages of this disease so its hard to draw > conclusions. I'm right handed too, but both have always been affected. > As far as I know, your hands will be affected by PD. You need to see a > neurologist who is a movement disorder specialist. > > What caused your accident/injury? Where do you live? > > -----Original Message----- > From: N P > Sent: Wednesday, September 02, 2015 7:13 AM > To: [log in to unmask] > Subject: Re: HAND PROBLEM > > THANK YOU FOR RESPONDING TO MY MESSAGE. I HAVE BEEN 'MESSING AROUND' > SEEING > HAND SURGEONS FOR THE PAST YEAR OR SO AND HAD ONLY ONE OF THEM THAT WAS > WILLING TO DO SURGERY - THAT IS UNTIL HE FOUND OUT THAT I HAVE PD. NOW HE > ISN'T WILLING TO DO ANYTHING. THERE WAS A BIT OF CONFUSION IN MY > SITUATION > BECAUSE I WAS INJURED IN 11/2013 WHERE I ENDED UP LAYING ON MY LEFT ARM > FOR > 3 DAYS. THIS TOOK PLACE BEFORE I HAD A CONFIRMED PD DIAGNOSIS. I HAVE > HAD > TO GO THROUGH SEVERAL ROUNDS OF THERAPY FOR MY SHOULDER AND HAND. ONLY 3 > FINGERS ON MY LEFT HAND ARE STIFF AND NONE OF THE HAND SURGEONS CAN TELL > ME > WHY. IF IT IS DYSTONIA, ONE WOULD THINK THAT MY ENTIRE HAND WOULD BE > AFFECTED. FORTUNATELY I AM RIGHT-HANDED AND IT IS NOT AFFECTED. HAVE YOU > HAD BOTOX INJECTIONS FOR THE STIFFNESS IN YOUR HANDS? IF SO, DID IT HELP > YOU? > NANCY > > > Date: Tue, 1 Sep 2015 11:39:36 -0700 > > From: [log in to unmask] > > Subject: Re: HAND PROBLEM > > To: [log in to unmask] > > > > Nancy > > > > sounds like the beginning of micrographia and loss of fine motor > > skills. > > Parkinson has many awful symptoms t hat only get worse over time. > > I've > > had PD almost 20 years now and the "easy" movements like sifting or > > salting are the hardest. have to hunt and peck on computer now. > > cant > > drive or play piano. > > > > in beginning PD is not so bad,, so do everything you can now > > Ive never heard of anything that helps loss of our hands. > > > > Welcome but sorry u have 2 join this group. DBS brain surgery (while > > awake) helps tremor,dystonia and pain in hands. bit mine are l ike paws > > we are all different with regards to progress of disease and reaction to > > meds. > > > > GOOD LUCK and EXERCISE EXERCISE > > > > -----Original Message----- > > From: N P > > Sent: Monday, August 31, 2015 6:39 AM > > To: [log in to unmask] > > Subject: HAND PROBLEM > > > > HELLO EVERYONE. I AM NEW TO THIS LIST. I 'QUALIFY' FOR THE YOUNG ONSET > > CLASSIFICATION OF PD. I AM WONDERING IF ANYONE HAS A PROBLEM WITH > > MUSCLE > > STIFFNESS IN THEIR HAND AND IF THEY HAVE HAD ANY LUCK WITH TREATING IT. > > NANCY > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: > > mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: > > mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn