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yes, ray - rare diseases are expensive to treat but nowhere as expensive as here. 392 150mg capsules of tasigna (possibly enough for a 1 year treatment) are selling for about $17,000 in germany if there is no insurance. scroll down the page to see pricing ;) http://www.onmeda.de/Medikament/Tasigna+150+mg|+-200+mg+Hartkapseln--wirkung+dosierung.html sure makes you wonder! ----- Original Message ----- From: "Rayilyn Brown" <[log in to unmask]> To: <[log in to unmask]> Sent: Tuesday, October 20, 2015 2:32 AM Subject: Re: survival rates > good idea, Trauti, I've already emailed my neuro. he does research at > the Barrow Institute. If it was affordable we could try it. I take > isradipine, a bp med being used in a phase 111 PD trial. it costs > something like $60 for 3 mo supply; > > this cost of $10,000/mo really shocked me. I knew that rare > diseases are expensive to treat, but Dr.Brian Druker got a NIH grant to > develop this cancer drug. PD is not a rare disease either. > > I wrote to Dr. Pagan to see if I can determine who at Novartis he is > contacting to try to get lower costs for his trial participants. > > If I find out I think we should all make an effort to contact Novartis. I > know I will. > > -----Original Message----- > From: Trauti Boyd > Sent: Monday, October 19, 2015 3:45 AM > To: [log in to unmask] > Subject: Re: survival rates > > ray, i guess all that can be done right now is check if your local > facility > intends to participate in upcoming trials. > i know i will check with my husband's neuro at duke > trauti > > ----- Original Message ----- > From: "Rayilyn Brown" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Monday, October 19, 2015 1:28 AM > Subject: survival rates > > >>I also learned that cancer survival rates are lower in the US than in >>Sweden, India and other places where drug costs are not immoral. >> >> I knew the drug companies were screwing us. but this really brings it >> home. >> >> Ray >> Rayilyn Brown >> Past Director AZNPF >> Arizona Chapter National Parkinson Foundation >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn