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Great letter Tony On 10/23/2015 10:47 AM, Kathleen Cochran wrote: > My letter to Carrie Scott at Novartis. I will forward to August Salgado > also. > > Please feel free to use any part of it to make your own letter. Comments, > suggestions, editorial tweaking are all welcome. > > Can someone check to see if this issue shows up anywhere on Facebook and > Twitter? > > > Kathleen > > Who knows what kind of response this will get. It does feel good to do > something. > > ---------- Forwarded message ---------- > From: Kathleen Cochran <[log in to unmask]> > Date: 23 October 2015 at 10:34 > Subject: Attn: Carrie Scott (re: Nilotinib) > To: [log in to unmask] > > > Dear Ms. Scott, > > I am one of millions of Parkinson's patients around the world who were > stunned at the results of the Phase 1 trial of Novartis's drug, Nilotinib, > which succeeded in what seemed until now to be a fantasy—the reversal of > the Parkinson's process. That this drug may work similarly for Alzheimer's > sufferers seems like a miracle. > > For all of us in the Parkinson's and Alzheimer's communities, this is very > good news. Unfortunately, we also were hit by bad news. The pricing of this > drug in the U.S. runs above a hundred thousand dollars per year, putting it > out of reach for all but the wealthiest citizens. > > How does Novartis justify this? The drug was developed with taxpayer > dollars. > > Surely, given the vast numbers of Parkinson's and Alzheimer's patients, > Novartis stands to reap substantial gains if Nilotinib is widely prescribed > for these patients. > > Would it not be true corporate responsibility for Novartis to go public now > with a promise that if Nilotinib should prove effective in reversing the > course of these terrible, dreaded, and widespread diseases, not one > individual who needs the drug will have to do without it because of cost. > > Success for Novartis should mean hope for all...not just the rich. > > Sincerely, > > Kathleen Cochran > Tappan, NY > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn