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ray, i will join you in sending an email to mr salvado but the problem is not only with novartis. our health care structure needs to be reworked. until then novartis will, most likely, have people apply for assistance through their 'compassionate' program. right now there is no need yet to worry about insurance coverage. no insurance will pay for an off-label use. and in this case off-label use will be very transparent since the drug was fda approved for leukemia. that means we're looking at heaven knows how many years till approval for parkinson's works its way through the system, if at all. that's why i have been checking on tasigna pricing in other countries to see if an out-of-pocket purchase is somehow possible. naturally, that requires a neurologist writing a prescription and for that prescription to be accepted in another country. from the way it looks that leaves only canada. since the article mentioned that tasigna was given in a much lower dosage for the parkinson's trial than for leukemia treatment i'm hoping one 150mg pill a day is what was used. i'm still trying to confirm this though ...... ----- Original Message ----- From: "Rayilyn Brown" <[log in to unmask]> To: <[log in to unmask]> Sent: Friday, October 23, 2015 3:19 AM Subject: making our voices heard > start with [log in to unmask] > > I know how discouraging this is, but I cant do it alone. > > at one time women couldn’t vote in this country; at least we have > computers to spread the word. > > feel free to use or copy anything I have written > > it felt good to get a response from Dr. .Druker > > help me out here > > > Ray > Rayilyn Brown > Past Director AZNPF > Arizona Chapter National Parkinson Foundation > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn