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Trauti thank you. I've been thinking about you and know you are correct and realistic. Here's the thing with me.....while waiting to die I want to have something to do. I'm thinking what if everyone got on this and emailed politicians, news stations/ used Twitter and Facebook, etc. I too am looking into insurance pricing for Tasigna 150 mg 28 day supply. ,Results from CVS Caremark, my supplier were $50 copay Tasigna from Specialty Pharmacies under Anthem BLue Cross prescription drug plan. on Jan 1, 2016 LAUSD Los Angeles City Schools, my pension and insurance suppler changes me from Anthem drug plan to SilverScript drug plan which is supposed to be comparable. This is because I am Medicare Part D eligible. Because I cant speak well enough to phone, I got on"chat" site with SIlverScript and they quoted me a whopping $871.01 for Tasigna. but I was only able to ask "how much will Tasigna cost me?" If I tried to explain re CVS medicare part D theyd drop me. can barely use computer. I'm currently taking a blood pressure FDA approved drug, isradipine,, now in drug trials for PD. I guess if I had leukemia I could get Tasigna too. However, my doctors didn’t have to specify why isradipine was being prescribed, but I worried about that re Tasigna. Thank u so much for your input. I know our whole system is wrong, but I just don’t want to go down without a fight. I THINK IT IS IMPORTANT THAT WE EXCHANGE IDEAS AS TO HOW TO BEST DO IT. THANKS AGAIN -----Original Message----- From: Trauti Boyd Sent: Friday, October 23, 2015 2:53 AM To: [log in to unmask] Subject: Re: making our voices heard ray, i will join you in sending an email to mr salvado but the problem is not only with novartis. our health care structure needs to be reworked. until then novartis will, most likely, have people apply for assistance through their 'compassionate' program. right now there is no need yet to worry about insurance coverage. no insurance will pay for an off-label use. and in this case off-label use will be very transparent since the drug was fda approved for leukemia. that means we're looking at heaven knows how many years till approval for parkinson's works its way through the system, if at all. that's why i have been checking on tasigna pricing in other countries to see if an out-of-pocket purchase is somehow possible. naturally, that requires a neurologist writing a prescription and for that prescription to be accepted in another country. from the way it looks that leaves only canada. since the article mentioned that tasigna was given in a much lower dosage for the parkinson's trial than for leukemia treatment i'm hoping one 150mg pill a day is what was used. i'm still trying to confirm this though ...... ----- Original Message ----- From: "Rayilyn Brown" <[log in to unmask]> To: <[log in to unmask]> Sent: Friday, October 23, 2015 3:19 AM Subject: making our voices heard > start with [log in to unmask] > > I know how discouraging this is, but I cant do it alone. > > at one time women couldn’t vote in this country; at least we have > computers to spread the word. > > feel free to use or copy anything I have written > > it felt good to get a response from Dr. .Druker > > help me out here > > > Ray > Rayilyn Brown > Past Director AZNPF > Arizona Chapter National Parkinson Foundation > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn