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Ms. Valenze:

Thank you for your speedy response to  my email.

My inquiry, however, was mainly about the cost of  this cancer drug and I understood  that Novartis had a “compassionate”policy for a  leukemia patient who couldn’t afford the drug.

Dr.  Brian  Druker,  who developed the drug  informed me that the  Leukemia and Lymphoma Society paid for  his research.   Since Novartis didn’t develop this drug, I was wondering how such an outrageous price of S120,000 a year could be  justified.

I understand  Georgetown University Medical  Center is planning on conducting further trials using Nilotinib for other neurodegenerative diseases such as  Alzheimer’s, ALS, and Huntington’s.

If  Tasigna or Nilotinib does prove  beneficial or even curative to Parkinson’s and/or other diseases, there is a billion dollar market for Novartis at S1 per pill.

Why not be truly compassionate and lower the cost of this drug?

How heartbreaking it would be if unaffordable cures were available and  millions had to beg for them.

Thanks again for your kind consideration of my plea.


From: Valenze, Virginia 
Sent: Monday, October 26, 2015 12:21 PM
To: [log in to unmask] 
Cc: Ericksen, Veronica ; SANDERSON, Ayo ; Frable, Anna ; JaffeNagler, Alissa 
Subject: Your Query Regarding Nilotinib Study

Dear Ms. Brown,



Thanks so much for your inquiry regarding the study on Parkinson’s Disease. 



We understand that the cost of medicines can be challenging for some patients. Novartis offers a significant patient 

Ray
Rayilyn Brown
Past Director AZNPF
Arizona Chapter National Parkinson Foundation

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